Well, another heart scan tomorrow, fingers crossed we get the results from his monitor too.
I've had an interesting letter through the post it was to my dr but we gad a cc, it is re the "noonan syndrome" screening, the results from the lab have come back and so far he is coming up clear but the particular test only comes up on 45% of people with the condition, it suggests further screening will cost approx £1000 and further screening in his heart is £530 (unsure If that means the further testing is not offered on NHS or if that's the lab just telling his consultant the information)... His heart consultant put a cover letter with it saying he'll discuss the matter further with us in clinic, so fingers crossed its him we actually see tomorrow, as I'm quite confused x