Hydrocephalus - Our baby has now been born - Birth Story on page 18

[rakrak]

hiya, think i agree with evie...have you got a close friend or family member who would go to the hospital with you? if so i would fight tooth and nail for this baby and stay until someone gives you all the answers you need...
love and hugs xxx

 

[mandplus4]

hi im so sorry to hear what u are going though, my thoughts will be with you xxxx

 

[Toonlass]

i am so sorry you are going through all this. I hope you get to speak with someone with some real experience at the hospital and get the answers you need xx

 

[Terrie]

oh hun thinking of you xx

 

[katiejane]

I've only just seen this and am so upset for you, i also feel angry your not getting support or better care. To just shove you the tablets and send you on your way makes me sick. I agree with everything thats been said already, its your decision and you need to take your time. Don't do anything your not comfortable and get as many expert opinions you can sweetheart. Thinking of you, lots of love x

 

[Zandytoll]

I can't really say anymore than has already been said. Thinking of you xx

 

[karen78]

agree with evreyone cant say much else. thinking of you x

 

[tessa123]

I just don't know what to say. I agree with what's already been said. Thinking of you xx

 

[Mamafy]

Still thinking of you hun

 

[joanna0110]

Hi Sammy, so sorry to hear what you are going through. I agree with the others don't make any decisons until you have all the answers you want. You will be in our thoughts xxx

 

[midnightrose25]

Oh my god this is so sad, i'm so sorry for you sweetheart i've got tears in my eyes reading that... you are in such an awful position, we're all so sorry xxx we are all with u if u need any of us, to talk to, i know we can't help but we can be there for you xxxxxxxx

 

[Lovisa]

Just seen this, and I'm crying for you inside and out. What they have done is wrong.
There isn't much more I can say that others haven't. I know nothing anyone can say or do will stop you hurting, hopefully you know people are thinking of you. And we are all sending you our love xxx

 

[FebMum2Be]

I am so sorry to hear this I hope they give you more answers.. I dont think they have handled the situation very well Thinking of you hun xxxx

 

[titch]

Im so sorry this is happening to you, Im crying for you reading this. I hope you get the answers you need. I you have doubts in your mind you need to get rid of them and be sure before you make a decision. If I were in your position I would want to explore every opportunity too.
Thinking of you xxx

 

[Mamafy]

How are you today hun?

 

[Mervs Mum]

I was just going to ask the same. How's things?

 

[Sam's Mum]

Still thinking of you

 

[xxsammyxx]

How are you today hun?

Hi hun, today I feel anxious, scared but more positive (in a way) Allan (OH) rolled in about 10pm last night after 6 hours on the piss, what a support he was for me and my daughter!!! I never took the tablets... I can't let her go this easily. I have made an appointment with the Neurologist at 4.15pm to discuss EVERY option. These are the people that I trust with her life not some jumped up sonographer/doctor (whatever he wants to call himself) pushing pills onto us. I have a million questions to ask and I want to give her a chance "against all odds" Meanwhile im still a frantic mess. OH has already stated if she has brain damage he is "walking" god you really get to know people when they say stuff like this. Her life is more important than my relationship so if he wants to walk then I guess he better get packing!

Does anybody happen to know... say we did bring her out at 24/26/30 weeks (we know we cant keep her in there for long due to the increase in fluid) and she suffered bleeding of the brain and was brain damamged, would they be able to check for this after she was born and would we be able to decide to take her off life support if this happened and we knew she had no quality of life or was suffering? I dont want her to suffer.... be kept alive for the sake of it and i'm scared they might tell us that its too late, we took the chance now deal with it!

I have stopped crying and now just want to be as strong as I can for her and try and make the best decision for her. If they wont help us, dont think it will turn out, have huge complications then I have to take that into consideration as I trust the advice of the neurologists we have and not the doctors at that hospital. The Neuro has 20 years experience so I feel safe with her.

Also, thanks for everyones advice and support it has meant the world to me when I dont feel that I have the support from my partner right now. Please continue to add any success stories and I guess stories that have not ended so well sadly as it will keep me grounded and try to help with the awful decision we have to make. Surely she will have a survival rate at 24/26 weeks... I am sure I have read of premature babies living at 23 weeks before, does anyone know of anyone that this has happened to and what were the final results? Thanks xxx

 

[Mamafy]

Firstly hugs

You are giving your daughter every chance and I truly admire you for that It is hard when you are getting opposed by your oh but a mum's instinct is very strong.

To answer some of your questions, yes a 24 weeker can survive but it is an uphill battle. But atm you have either A) take those tablets and your daughter has no chance anyway or B) take the chance. If your prem baby has a bleed and there's no saying she will it would be quite some time before the outcome of that would be known (1 year-18 months at least) and they definitely won't switch off machines for that as these bleeds can have such minor effects.

Every week counts but /what I would say is and I'm not being sexist little girls do better in NICU, they seem to be stronger than boys and I've been told that by neonatal nurses and paediatricians. It didn't help that I had a boy in the NICU at the time

I had my son at 28 weeks and anything that could go wrong did go wrong but on the other hand I saw little 24 weekers overtake him and be perfectly fine

There are no guarantees hun, that's the thing.

You should know more after your appointment today, I so hope you get positive news again; you deserve to

Will you let us know?

 

[titch]

Hun on this website is a lovely story of a little boy born at 24 weeks. I don't know whether you want to visit the site or not cos it covers such a range of medical issues and might set you worrying about things you dont need to worry about.

The little boy was born at 24 weeks, spent 9 weeks in hospital where they supported his breathng and he gained weight to 5lb. He's doing very well now and seems to lead a 'normal' childhood going to his local school.

http://www.24weeksplus.com/index.php?doc=138&p=91

I just think you ought to know it is possible for a baby to survive born at 24 weeks but Im sure the neuro will talk you through the risks of that. I think the babies lung development is usually the critical factor when premature. Obviously every case is different, and Im so glad you are getting the chance to speak to the specialist before making a decision.

Im so amazed by how strong you are and Im so sorry that your OH is not coping well with the situation. Good luck with your meeting later on xxx