SPD Support Thread

[leesey]

Do they do early inductions? Would you consider getting baby out at 37 weeks if they thought it was safely possible?

I requested this at my consultant appointment on Friday (although it was a locum rather than my usual consultant) and she basically said well you've lasted this long another 2 weeks isn't going to make a difference
This is despite me having SPD and recurrent reduced movement. You'd think one or the other was reason enough. But no, I'm having to wait xx

 

[tweetyfoo]

I'm not taking any pain relief

Paracetamol doesn't touch the sides, and its all I've been told is safe to take, as it does nothing I don't see the point.

I'm still hoping for a natural labour, would rather put up with the pain for an extra 2 weeks than have an induction (I know, I say that now). I genuinely figure that things can't get much worse, i'm practically bed ridden already

Today I am totally fed up of the whole thing though .. I am in so much pain, my left hip has felt dislocated for days. If it doesn't ease in a couple of days I'm going back to the physio

 

[willowwisp]

I'm not taking any pain relief

Paracetamol doesn't touch the sides, and its all I've been told is safe to take, as it does nothing I don't see the point.

I'm still hoping for a natural labour, would rather put up with the pain for an extra 2 weeks than have an induction (I know, I say that now). I genuinely figure that things can't get much worse, i'm practically bed ridden already

Today I am totally fed up of the whole thing though .. I am in so much pain, my left hip has felt dislocated for days. If it doesn't ease in a couple of days I'm going back to the physio

I might as well swallow smarties as paracetamol, so I know how you feel. Both tramadol and morphine (as well as codeine I believe) are safe in pregnancy as long as you are not about to go into labour. Strong pain killers can stall the progression of labour, but so long as your tri 2/early tri 3 then, assuming you've not got other complications that may factor in, they should be safe.

My pain got so intense and I was struggling to breath that they were worried about the pain (and stress of) sending me into premature labour, hence the morphine. I only take it when I really can't cope and feel the anxiety kicking in. I react really well to heat, so I just manage on that where I can.

It's utterly miserable isn't it I don't think we'll be having a second child, I could never manage to look after a child and be in this pregnant state

 

[leesey]

I'm not taking any pain relief

Paracetamol doesn't touch the sides, and its all I've been told is safe to take, as it does nothing I don't see the point.

I'm still hoping for a natural labour, would rather put up with the pain for an extra 2 weeks than have an induction (I know, I say that now). I genuinely figure that things can't get much worse, i'm practically bed ridden already

Today I am totally fed up of the whole thing though .. I am in so much pain, my left hip has felt dislocated for days. If it doesn't ease in a couple of days I'm going back to the physio

I might as well swallow smarties as paracetamol, so I know how you feel. Both tramadol and morphine (as well as codeine I believe) are safe in pregnancy as long as you are not about to go into labour. Strong pain killers can stall the progression of labour, but so long as your tri 2/early tri 3 then, assuming you've not got other complications that may factor in, they should be safe.

My pain got so intense and I was struggling to breath that they were worried about the pain (and stress of) sending me into premature labour, hence the morphine. I only take it when I really can't cope and feel the anxiety kicking in. I react really well to heat, so I just manage on that where I can.

It's utterly miserable isn't it I don't think we'll be having a second child, I could never manage to look after a child and be in this pregnant state

My doc wouldn't prescribe anything else

 

[willowwisp]

I'm not taking any pain relief

Paracetamol doesn't touch the sides, and its all I've been told is safe to take, as it does nothing I don't see the point.

I'm still hoping for a natural labour, would rather put up with the pain for an extra 2 weeks than have an induction (I know, I say that now). I genuinely figure that things can't get much worse, i'm practically bed ridden already

Today I am totally fed up of the whole thing though .. I am in so much pain, my left hip has felt dislocated for days. If it doesn't ease in a couple of days I'm going back to the physio

I might as well swallow smarties as paracetamol, so I know how you feel. Both tramadol and morphine (as well as codeine I believe) are safe in pregnancy as long as you are not about to go into labour. Strong pain killers can stall the progression of labour, but so long as your tri 2/early tri 3 then, assuming you've not got other complications that may factor in, they should be safe.

My pain got so intense and I was struggling to breath that they were worried about the pain (and stress of) sending me into premature labour, hence the morphine. I only take it when I really can't cope and feel the anxiety kicking in. I react really well to heat, so I just manage on that where I can.

It's utterly miserable isn't it I don't think we'll be having a second child, I could never manage to look after a child and be in this pregnant state

My doc wouldn't prescribe anything else

That's terrible. I can't believe they have left you in this much pain this early on

You should try your GP (or a different GP) if you get to the point of not being able to manage it. I was literally throwing myself at walls when we had a proper pain relief chat, I've found my GP far more sympathetic and keen to actually help than the consultant who was frankly rude and dismissive.

 

[leesey]

I'm not taking any pain relief

Paracetamol doesn't touch the sides, and its all I've been told is safe to take, as it does nothing I don't see the point.

I'm still hoping for a natural labour, would rather put up with the pain for an extra 2 weeks than have an induction (I know, I say that now). I genuinely figure that things can't get much worse, i'm practically bed ridden already

Today I am totally fed up of the whole thing though .. I am in so much pain, my left hip has felt dislocated for days. If it doesn't ease in a couple of days I'm going back to the physio

I might as well swallow smarties as paracetamol, so I know how you feel. Both tramadol and morphine (as well as codeine I believe) are safe in pregnancy as long as you are not about to go into labour. Strong pain killers can stall the progression of labour, but so long as your tri 2/early tri 3 then, assuming you've not got other complications that may factor in, they should be safe.

My pain got so intense and I was struggling to breath that they were worried about the pain (and stress of) sending me into premature labour, hence the morphine. I only take it when I really can't cope and feel the anxiety kicking in. I react really well to heat, so I just manage on that where I can.

It's utterly miserable isn't it I don't think we'll be having a second child, I could never manage to look after a child and be in this pregnant state

My doc wouldn't prescribe anything else

That's terrible. I can't believe they have left you in this much pain this early on

You should try your GP (or a different GP) if you get to the point of not being able to manage it. I was literally throwing myself at walls when we had a proper pain relief chat, I've found my GP far more sympathetic and keen to actually help than the consultant who was frankly rude and dismissive.

I am at the point of not being able to manage!! I'm 38 weeks, I was diagnosed with SPD at 14 weeks, and no one has given me anything other than crutches, tubigrip, and a pat on the back. I'm beyond fed up.

 

[mrs_bump]

It does make me so angry how many Drs don't seem to take SPD seriously and just seem to think its a 'normal' part of pregnancy, if only they could see how much we are all suffering. Tried to get a few bits of shopping today, made it back to my car and just burst into tears from the pain and frustration of it all xx

 

[willowwisp]

I'm not taking any pain relief

Paracetamol doesn't touch the sides, and its all I've been told is safe to take, as it does nothing I don't see the point.

I'm still hoping for a natural labour, would rather put up with the pain for an extra 2 weeks than have an induction (I know, I say that now). I genuinely figure that things can't get much worse, i'm practically bed ridden already

Today I am totally fed up of the whole thing though .. I am in so much pain, my left hip has felt dislocated for days. If it doesn't ease in a couple of days I'm going back to the physio

I might as well swallow smarties as paracetamol, so I know how you feel. Both tramadol and morphine (as well as codeine I believe) are safe in pregnancy as long as you are not about to go into labour. Strong pain killers can stall the progression of labour, but so long as your tri 2/early tri 3 then, assuming you've not got other complications that may factor in, they should be safe.

My pain got so intense and I was struggling to breath that they were worried about the pain (and stress of) sending me into premature labour, hence the morphine. I only take it when I really can't cope and feel the anxiety kicking in. I react really well to heat, so I just manage on that where I can.

It's utterly miserable isn't it I don't think we'll be having a second child, I could never manage to look after a child and be in this pregnant state

My doc wouldn't prescribe anything else

That's terrible. I can't believe they have left you in this much pain this early on

You should try your GP (or a different GP) if you get to the point of not being able to manage it. I was literally throwing myself at walls when we had a proper pain relief chat, I've found my GP far more sympathetic and keen to actually help than the consultant who was frankly rude and dismissive.

I am at the point of not being able to manage!! I'm 38 weeks, I was diagnosed with SPD at 14 weeks, and no one has given me anything other than crutches, tubigrip, and a pat on the back. I'm beyond fed up.

Sorry I couldn't see signatures when I typed that. Have you tried going to a&e or calling the delivery suite and saying whilst your not in labour you can't manage the pain any longer? If your pushy they might do something as they might have a different consultant on shift, someone more aware of the pain and sympathetic. I really feel for you and can totally understand how you've had enough

 

[tweetyfoo]

Leesey

I can't believe you've had to put up with this so long.

Dr's just don't take it seriously at all. It seems to me if anything is associated with pregnancy then they aren't arsed.

If I was having problems with my pelvis and I wasn't pregnant, they'd be doing a hell of a lot more. More physio for a start, muscle manipulation and massage etc can all help. I think in severe cases it should be something thats done.

 

[1stBump12]

Leesey - I can only imagine how fed up you are! I was diagnosed @ 13/14 weeks as well, and I am in a right pickle already! I've completely had enough at only 23 weeks!! My pubic bone and coccyx are so sore I feel like I'm sat on hot pokers and my pubic bone feels like it's going to split in half
I'm due back at my physio next Monday, I have to have a weekend of complete rest - only going to the loo and then no work before my appointment to see if I can reduce the inflammation enough for her to be able to help?!?! I nearly thumped her last time and it's worse than before!

Have finally been able to speak to my MW, and whilst sympathetic to a point, couldn't suggest anything other than internet support groups. I have my 24 week appt the day after I see the physio and I'm so close to asking to be signed off work for the rest of my pregnancy, will see what the physio says/does. Lack of money is the least of my worries right now

SPD officially sucks!! I am amazed at some people's attitudes when you tell them you won't be doing it again (pregnancy) - they all turn around and say ' Of course you will! You'll forget about all this when they're here!!' No seriously I won't be having another - I physically, mentally and emotionally CANNOT do this again

Sorry feeling rubbish and low today Hope everyone is feeling brighter?!?! Xxx

 

[leesey]

Had my physio app thIs morning, she was really lovely, but obviously very little she could do. She recognised the bags under my eyes as spd eyes! She was so sympthetic about the vicious cycle of lack of sleep, physical exhaustion and physical pain.
All the sympathy in the world couldn't make the pain go away but at least it was nice to get some acknowledgement. She couldn't believe the doctor was making me go to 40+ weeks in my condition so in going to try and push the issue again, even if I manage to get a sweep out of it ill be happier.

 

[willowwisp]

I think unless you've had SPD that it's very difficult to understand the constant and unrelenting around the clock pain. I think that is why people are so unsympathetic, because it must be impossible to imagine. There is no position which helps, moving doesn't help, remaining still doesn't help, normal painkillers don't even come close to touching it, the feeling of instability when you walk is not just painful, but frightening. It's exhausting, worrying, and on top of that you have to battle with every medical professional to get any help at all.

We are only at 22 weeks and have been saying for 6 weeks now, NEVER again. I've no idea what mess I'll be in by full term. I've got to take my hat off to Leesey for getting to 38 weeks, I think I might have a pain break down long before then. Nothing I think tests your strength of character like constant relentless pain.

I'm very very lucky because I have the benefit of a BUPA physio, who is frankly, in a totally different league to the NHS physios around here. And I also am lucky enough to have a very pro-active and caring GP, my GP's practice have looked after me so far through this pregnancy, the consultant has been useless.

 

[willowwisp]

Had my physio app thIs morning, she was really lovely, but obviously very little she could do. She recognised the bags under my eyes as spd eyes! She was so sympthetic about the vicious cycle of lack of sleep, physical exhaustion and physical pain.
All the sympathy in the world couldn't make the pain go away but at least it was nice to get some acknowledgement. She couldn't believe the doctor was making me go to 40+ weeks in my condition so in going to try and push the issue again, even if I manage to get a sweep out of it ill be happier.

Good luck hun x If you limp into the delivery suite (I assume your having a hospital birth with your SPD?) and have a good cry and complain they should deal with you there and then

 

[Zoe20]

Ladies i take my hat off to you all, no ones how painful spd is unless you have it or had it. I see my mw this thursday, not sure what will happen and ive been signed off work for the past 8wk now. I have a feeling work/mw/gp will say early maternity leave. Tbh i miss work, But you can be a health and support worker when you can hardly dress/bath/look after yourself. One of my service users (bless her we get on like a house on fire) had a hip op before xmas, and she was telling me its awful, having her independence taken from her, at the time i couldnt even imagine what it would be like. Now with spd I can. one of my work mates told me she was asking about me and the baby, i told her to tell her im ok and expecting a boy. Tbh i would love to go and visit her, but its against the rules and all.

Had a idea last night, was thinking about creating an awareness grp through fb, to make people more aware of spd and to mainly support sufferers of spd, but only an idea.

Hope you are all as well as can be. xxx

 

[willowwisp]

I think a facebook support group is a fabulous idea. I suspect that SPD feels different for every woman too. For me, for example, it's like my joints have been frozen, like liquid nitrogen has been pored in and my bones and joints are screaming with burning cold. I have heard others say it's a red hot pain.

I guess that the location of the pain can vary according to the previous levels of hyper mobility. I was more mobile through my right SIJ than left and as a result of that I'm now suffering more taking my right leg forwards.

 

[tweetyfoo]

My SPD can feel different at different times of the day, but it is a red hot pain - it just moves a lot.

As you know last couple of days its been focused in my left hip and groin area ... it feels dislocated ... thats the only way I can describe it.

I've been signed off work for 4 weeks now and have no intention of going back now. At first I was gutted, but I was breaking down every day at work due to the pain I was in.

I'm very lucky that DH is a teacher and is off work at the moment, but I don't know what I'll do when he goes back to work in 3 weeks

Unfortunately I have been in this position before where I've had my independance snatched away from me due to a back injury ... its completely pants!

I would also like to add that I know the kind folk in Asda are only trying to help, but I really wish they would stop trying to force me into a mobility scooter everytime I go into a shop! I can accept a normal wheelchair and let hubby push me about (we have a good giggle ... he's a big kid) but the mobility scooter is one step too far for me

 

[Zoe20]

hi ladies, ive made a group on facebook if any one wants to join, heres the link

https://www.facebook.com/groups/390243354362680/

 

[leesey]

Great idea Zoe, even if I've only got a fortnight left, still good to raise awareness xx

 

[1stBump12]

Fab idea! Thank-you xx

 

[tweetyfoo]

So its 3:52am

I've been to sleep ... but the pain in my left hip and my right groin has woken me up, its so bad I want to scream into
my pillow.

This is what the midwives, GP's and physios need to see ... this is ridiculous!