My bosses little girl Ellie was taken to hospital this afternoon.
She is a absolutely gorgeous little girl unfortunately she has a terminal illness that as far as they know is linked with the genetics of her Mum and her Dad. They had a little boy called Thomas who sadly died when he was 14months old but they were told by doctors that the chances are that if they were to have a little girl she wouldn't have the same problem. They don't actually have a name for what Ellie because it is so very rare she can't speak or walk and is tube fed as she can not swallow she needs 24hour care at all times.
She actually has a charity under her name so that they can raise enough money to build a haven for other terminally ill children so they and their parents can have a holiday. They have had to take Ellie to hospital this afternoon as she was having trouble with her breathing and was on oxygen last night. She was also ill over Christmas but she fought it off and has been doing well recently.
Please could everyone send her good thoughts and pray for her to get better soon she is such a beautiful little girl and her life has so much influence on others I have only known my boss for a very short time but she would do anything for anyone they are such a lovley familly.
I'm sorry if reading this has upset anyone it is a extremely rare condition that Ellie has so it would be very very very unlikely any of us will have to go through this. I just think she needs lots of prayers at this time and lots of thoughts being sent too her.
Thank you xxxxxx
She is a absolutely gorgeous little girl unfortunately she has a terminal illness that as far as they know is linked with the genetics of her Mum and her Dad. They had a little boy called Thomas who sadly died when he was 14months old but they were told by doctors that the chances are that if they were to have a little girl she wouldn't have the same problem. They don't actually have a name for what Ellie because it is so very rare she can't speak or walk and is tube fed as she can not swallow she needs 24hour care at all times.
She actually has a charity under her name so that they can raise enough money to build a haven for other terminally ill children so they and their parents can have a holiday. They have had to take Ellie to hospital this afternoon as she was having trouble with her breathing and was on oxygen last night. She was also ill over Christmas but she fought it off and has been doing well recently.
Please could everyone send her good thoughts and pray for her to get better soon she is such a beautiful little girl and her life has so much influence on others I have only known my boss for a very short time but she would do anything for anyone they are such a lovley familly.
I'm sorry if reading this has upset anyone it is a extremely rare condition that Ellie has so it would be very very very unlikely any of us will have to go through this. I just think she needs lots of prayers at this time and lots of thoughts being sent too her.
Thank you xxxxxx