Hope this isn't inappropriate but you might want to watch the Sally Phillips documentary that was on the other day 'A World Without Down's Syndrome?' It might help with seeing real life experiences of children with Down's xx
I watched it but had a different opinion. It was extremely biased. She tried to make out she was going to be assessing the 'new' NIPT testing....but didn't even mention the fact that
1. It's optional
2. It assesses for other syndromes
3. A better level of accuracy should only be seen as a good thing!
She did not interview/show children with Down's Syndrome which had more severe issues, she only showed high functioning DS children like her son. So where were the interviews showing the other side of being a parent with a DS child?! Not exactly a very balanced documentary.
She herself did have screening but was told it was low risk and then found out after birth that her son had DS. How does anyone know how she would have reacted if he had been diagnosed at the screening - it's easy for her to say now that she loves her boy and wouldn't terminate, but in reality how do any of us know what she would have done!? For all we know she would have terminated and it would have never been made public.
She made out the introduction of the NIPT would increase terminations for DS - in reality I don't agree. You have the right to CHOOSE whether to have screening, and if high risk you have the CHOICE to do an NIPT/CVS/Amnio. If you were planning on not terminating you would either opt out at any stage or be prepared for life with a DS child. Just because it's more accurate does not mean more people will terminate. If high risk returned for any of the 3 syndromes via NIPT then usually it still needs confirmation via amnio/cvs, therefore if it comes back low risk then you are increasing the safety of the pregnancy by not having a further invasive test.
I felt she was rather insensitive making a lady who had terminated for DS to watch YouTube videos of DS children - I mean really, is that a fair and professional thing to do?! The lady would not have made the decision to terminate easily, it will have been very upsetting, seems extremely insensitive in my opinion.
I think that in all honesty no-one has the right to influence ANYONES decision either way, and no-one has the right to judge if you decide to terminate - do I judge people who decide to keep a DSchild?!? Nope I do not, that's their choice and their life, absolutely nothing to do with me!! I feel Sally was blatantly trying to influence the public to not terminate in future for DS....but she is doing exactly the same thing as what she said the medical profession does - she said they pressure people to terminate (absolute crap in our experience)....she's just pressuring people to not terminate.
Although I do acknowledge the importance of raising awareness of life with a DS child, and providing an insight into it all, I just wish she had either just made it about DS and shown every side to it, or made it far more balanced and educational regarding the testing. Whereas all she did was make a very biased diary and make out everyone who terminates is wrong for doing so as they are trying to eradicate DS.....hmmm