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*** April 2018 Mummies ***

I’m high risk becaus of EMCS with DS :( I have my first consultant appointment on 2nd November (which I am not looking forward to)
 
Awww cossie,itll be fine. My consultant last time was lovely and i rarely saw her so wasnt a big deal. I bet you feel reassured after discussing a plan.

I'm low risk,should really be consultant as bmi is just over but cos it was all fine last time she said can be left alone.
Hurrah for not having to have the gtt again :D xx
 
I've had the dreaded phone call about my screening. I've been called in as the results have come in as 1 in 91 x
 
That’s not too bad Loula. I’m sure all is fine :) I haven’t had a phone call or a letter yet
 
They want us to go in this morning and discuss possible further testing.
 
Oh wow I would of thought 1 in 91 is a pretty low chance? How are you feeling? Xx
 
They ring anyone lower then 1:150 .
I have no idea until we discuss the options. Feel pretty crap at the moment x
 
They ring anyone lower then 1:150 .
I have no idea until we discuss the options. Feel pretty crap at the moment x

Oh Loula :( I’m sure everything is fine lovely. When we had the testing with DS I was asked by the sonographer if we planned on having any further testing and we said it didn’t matter. If we were high risk or even it was definitive we would have a child with Down’s syndrome we would still love that child more than anything. I think that’s the ultimate question to ask yourself - does it really matter? I know it will be more challenging and it would be a lot to get your heads around but I’m sure you would still love that child unconditionally :) :hugs: please let us know how you get on Loula, I’ll be thinking of you all afternoon. What time are you going in?

I actually had a letter through this morning with our results on after saying that we hadn’t heard anything!
 
Yes for alot if people it wouldn't matter about having downs but for us it does. My sister has downs and I have seen first hand how it impacts on everyone's life. We wouldn't want that and i know it sounds awful as tjere are ple ty of people whod love to be in our shoes. We have opted for the harmony test on Sunday. The midwife I saw said the neck measurement they did was in perfect range at 1.9. My daughter's was higher then that at 2.7.
 
Sorry Loula, I wasn’t aware. I understand how it could impact you then. You might just be higher risk because there’s Down’s syndrome in your family? Or could the risk be for Edwards or Patau’s syndrome? I notice on my letter there’s 2 calculated risks
 
Aww sorry you're having to go through it loula, is the harmony test the blood test? Do you have to pay for it? How long til you get the results? 1/91 is still a low chance,I know you'll get confirmation but the odds are in your favour!

Cossie that's why I've declined testing at 12 week scan,did last time too. For us personally it wouldn't matter we would continue anyway and if I was told I had high chance I'd just stress over something that might not happen anyway. Ignorance is bliss for me but can totally understand why people want to know,especially those who are higher risk.

Sending lots of love loula! Xx
 
The harmony test could be a really good idea. I think it’s a lot more accurate and although it can still only tell you risk they do so much testing that it’s as good as a definitive answer apparently. What time is your appointment Loula?

I know what you mean Mrs cookie. We only opted for it so that if we were high risk then we could at least try and prepare ourselves. But as it turns out we are lower risk than we were with DS. If I remember correctly DSs risk was 1:4400 and this time it’s 1:10,000
 
Yes we have to go private for the harmony which is Sunday and it's cost £400. It will rske a week or so to get the results it's not on the nhs until next year. I was really surprised that the midwives I saw mentioned it.
Downs isn't genetic so it's nothing to do with having it in the family and it's definitely downs. My Edwards and patau are 1: 10000
The odds could be alot worse I know that x
 
Sorry to hear that Lola,I hope everything goes well on Sunday.

We were the same declined the test for A and the same again this time.
 
Did you have low pappA loula? I had the harmony test in August - could you not have been referred for it at your trust so you didn't have to pay?

My risk was 1.2000 but I had low pappA which is a downs marker. Well low pappA and high beta hcg are the other things that affect the result. The screening midwife told me that when there is a gap between the two it increases your risk. I think the biggest marker is the nuchal fold though so hopefully as yours was not too high this is a good sign.

I hope you can get your reassurance quickly x
 
I had low papp a it being 0.36mom and high hcg at 2.11 mom but they didn't actually mention this.
No it isn't offered in the trust until next year. They offered the cvs but if prefer non invasive. The nuchal fold was 1.9mm. Although 1:91 is Still quite a low risk I feel I need to know as it would impact the rest of the pregnancy x
 
That's a shame you had to pay for it. I think at my trust they will refer you to Newcastle where they offer it there as a trial. I tried to pester then but they said only if my results had come back high risk would they have sent me for it.

What was the CRL? 1.9 isnt particularly high for fold so that's good news. I know how you feel and I'm sorry you're going through it. It's very stressful - I feel the same way as you about the situation and the money was more than worth it for th leave of mind it has given me. I hope it is the same for you and the time passes quickly xx
 
Have you booked your harmony test loula? When are you having it done? Will you find out the gender too? I know it seems a trivial thing to find out but if all is ok do you want to know what you’re having?

I’ve felt very queasy today and very crampy too :( starting to feel the anxiety creeping in again! I hope I’m not going to be like this once 20 week Scan is over as I won’t be having any more after that unless bump measures big again!
 

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