hydrops fetalis

bellabell

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Hi, I am currently 14 weeks pregnant and my 13 week scan showed that my baby had a high nuchal tran (about 9.8mm) and also had hydrops fetalis. I have had a few blood tests and i am still waiting on the results. I have been told that i can either wait to miscarry or to terminate the baby - the docs and specialists are telling me that these are my only options as if the baby was to to full term it will prob be still born or be born with severe prob and will most likely not survive. Has anyone this prob or similar. I feel totally sad and heartbroken. I held onto a tiny bit of hope but saw the specialist yesterday and was pretty much told that i would need to terminate the baby or wait to miscarry.
 
i have never experianced this however i wanted to send you loads of these :hug: :hug: :hug: :hug: :hug: :hug: :hug:
 
oh hun :( :( :( :( thats horrible.. i really have no advice though :( :hug: :hug: :hug: :hug: :hug: :hug:
 
so sorry to hear that. i dont even know wot hydrops fetalis is. it must be heartbreaking for you to have to make that decision. alot of us here have had the heartbreak of losing a baby, but i guess we were lucky that the decision wasnt in our hands at the end of the day. would ur baby have any quality of life if u manged to carry to term and it survived? also the pain of having a still birth maybe more than losing ur baby now? im not trying to give u advice because the decision can only be yours. life can be so cruel. :hug:
 
You poor thing.... :hug: the scans and blood tests aren't very accurate... I'd get an amnio done to be sure what you are dealing with before making such a huge decision... you may only be dealing with Downs Syndrome or it may be more severe, but only the amnio can give you clear results... :hug: :hug: :hug: :hug:
 
Squiglet said:
You poor thing.... :hug: the scans and blood tests aren't very accurate... I'd get an amnio done to be sure what you are dealing with before making such a huge decision... you may only be dealing with Downs Syndrome or it may be more severe, but only the amnio can give you clear results... :hug: :hug: :hug: :hug:

Aw I'm so sorry to hear this.

Squiglet has a good suggestion - I'd need to check everything so thoroughly before making such a hard decision.

What is the condition exactly?

Valentine Xxx
 
i looked on wickpedia to see what the condition is and it says this:
Hydrops fetalis is a condition in the fetus characterized by an accumulation of fluid, or edema, in at least two fetal compartments, including the subcutaneous tissue, pleura, pericardium, or in the abdomen, which is also known as ascites. The edema is usually seen in the fetal subcutaneous tissue, sometimes leading to spontaneous abortion. It is a prenatal form of heart failure, in which the heart is unable to satisfy the insatiable demand for an unusually high amount of blood flow.

Diagnosis

Hydrops fetalis can be diagnosed and monitored by ultrasound scans.

Treatment

The treatment depends on the cause.

Severely anemic fetuses can be treated with blood transfusions while still in the womb.

See also

Mirror syndrome

i hope this helps, if i was you i'd do some taking to the doctors/consultants and resherch more into it as it's a hard decision to make and untill i had resherched it more i wouldn't be able to make a decision, i hope your ok and i nkow you iwll make the right decision :hug: :hug: :hug: :hug: :hug: :hug:
 
:hug: i'm so sorry you are going through this,xx
 
I am so so sorry that life has been so cruel, I wish you the courage to choose wisely and the support you need also. I dont know what i would do but wish you the best of luck with your decision. :hug:
 
Thank you all for your replies. (and apologises if i should have posted this elsewhere) I am def going to get an amino done. I am hoping that the first scan was wrong - maybe something was wrong with the machine....I have an appt this week for another scan and they might do an amino - otherwise i will need to wait till next week when i am 16 weeks. I am hoping to get a totally different result otherwise i am not sure what decision i will make.
 
just wanted to let you know i am thinking of you and hoping that the repeat scan shows that everything is ok :hug:
 
:hug: :hug: i'm hoping tehy give you a animo and the results are good news and also that the 2nd scan goes well :hug: :hug:
 
Hi, just had my second scan today. Unfortunetly the results havent improved. I was given i choice of not watching the scan but chose to do so even though it was heartbreaking to be told things were worse. The nuchal trans thickness is now at 16mm and there is heaps of fluid surrounding the baby & there is a prob with the heart. I got a cvs done to find out what the problem was but either way my only 2 options are wait for a miscarriage or terminate. Still not sure of what i want to do. I have had a miscarriage before so i know what it feels like but dont know what to do. Any advice......
 
oh hun i'm so so sorry it's not better news :hug: :hug: :hug: :hug: and as for the decision i'd so what you and your partner feels best :hug: :hug:
 
hi I am so sorry to hear what you are going through I lost my baby boy just 11 days ago to hydrops he was 29 weeks his heart stopped I decided to let nature take its course and went in to labour 2 weeks after he passed away I am glad I did this! I got to see him and he was beautiful. I also called him Jude, you need to do what you feel is best for you I am waiting for tests to come back to see what caused his hydrops but I have rh neg blood type so it may be my blood type that has caused it! If you have any questions let me know!
 
I'm so sorry its not good news.... let the results come back from the cvs first before you make a decision to terminate or not. At your stage a miscarriage or an abortion will be equally distressing... but with the results.. you and your partner can at least make an informed decision as to whether to let nature take its course or not... :hug: :hug: :hug: scan's can only tell you so much and can be incorrect... :hug: :hug: :hug:
 
thank you all for your kind words of support....I have rec the results from the cvs. My baby has a chromosome problem. My second scan showed that my baby has a lot of problems and has no chance of surviving full term. I hate the fact that there are really only 2 choices. I dont think i can wait to miscarry. Therefore i have made the dreadful decision to stop the pregnancy (appt in a few days). I have been told that the docs will need to induce labour. I have no idea how i am going to cope with the emotional pain. I also dont know if i can deal with seeing/holding my baby at the end. Will I regret it? I have the scanned picture in my head that wont go away (i dont see what the docs see) and i am happy to hold onto this image. This is very difficult & depressing...... :(
 
:hug: :hug: :hug: you are making the right decision under difficult circumstances... :hug: :hug: :hug: you are a wonderful person... :hug: :hug: :hug:
 

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