Hi girls,
The last week has been a complete whirlwind and I am still finding everything a bit surreal - still trying to process how everything was fine with my little boy until so far into my pregnancy. How can it all go wrong so quickly?
We had a bit of a blow when we went back to the hospital on Friday, we were told that Ethan's blood hadn't grown at all for the chromosonal testing and if we wanted them to do this testing they would have to take some biopsies of Ethan's skin/tissue to try the tests again. We found out this morning that it is too late to even do this now as his tissue will have degraded too much. We have decided against a post-mortem as the doctors too feel that they will not find any cause from doing this, so our only hope of potentially finding a cause of his Hydrops is from the tests already taken. We will hopefully get all these back within the next 6 weeks or so.
We have spoken again this morning with the Neonatologist and he has said he does not think that Ethan had any chromosonal abnormality, as he was structurally perfect in every way. The main cause usually of Hydrops is cardiac related but they know that Ethan's heart was structurally fine as he has a detailed heart scan the morning before he died. We have been told that there are so many potential causes, we may never get the answers we want. They often can't find a cause with Non-Immune Hydrops. Having another child is so far from my mind right now, it actually makes me feel sick to think of being pregnant again, but I am sure in a few years I will probably feel different and want a sibling for our daughter Grace. I have to be sure though that this is no increased risk of this happening again, as I could not bear to lose another child.
We are trying to get on with the funeral arrangements, but it is just so hard - I am still recovering from my C Section, yet I have had to visit cemeteries and discuss the funeral service and be worrying about all sorts of stupid things that shouldn't be happening. I should have my little boy in my arms or at least still in my tummy until January.
I am starting to feel angry about why this has happened to us, we are good people who want a child so desperately and can provide a wonderful life/home but it just doesn't seem to be able to happen. After my miscarriage in March, I thought that surely that was all the bad luck we could have this year - how wrong could I be?!
If I didn't have my daughter, I just don't know how I could go on, she is keeping me strong and i know I have to get through this for her sake. She is so precious and it really does make you realise not to take any little thing for granted.