precious_cargo
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Hope everything goes ok xx
Ella Faith 8/2/13 8lb 13.5 oz x
Ella Faith 8/2/13 8lb 13.5 oz x
Fresh & Charlie
- Thread starter tweetyfoo
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fresh
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Thanks, forgot to come and update
So operation went well, they found more adhesions and reversed his stoma
He was ok then had a blip the next day when he was puking green (sign of blocked bowel) so they had to put a ng tube down and keep check on tummy
That settled the next day do think his bowel must have just been swollen
They started milk feed a few days later
1ml an hour ....
That was a week ago, he is now flying at 60mls 5 times a day and I'm allowed to give him a few spoons of baby rice today
They are incredibly pleased with him, I think they didn't think it would be this fast to get his feeds up
It's all about him wanting and drinking the milk whilst he is on nutrition into vein, and then his bowel has to be absorbing the milk....
So 10 poos a day mean he's not absorbing it, Charlie does 2 on average
So as they up the milk, they reduce the nutrition into vein, he's now on 50% of his needs, so he'll be off it in a few days
Then we wait a few more days to make sure he's gaining weight, then they take out Hickman line (permanent cannula to vein)
... THEN WE GO HOME!!!!!
On the 13th July we've been here 2 months, so would be good to Get out before then
Thanks all for your posts, the Internet keeps you going when you are in a place like this without seeing friends and doing normal stuff or even having a nice sofa to sit on
Not taking things for granted again xx
So operation went well, they found more adhesions and reversed his stoma
He was ok then had a blip the next day when he was puking green (sign of blocked bowel) so they had to put a ng tube down and keep check on tummy
That settled the next day do think his bowel must have just been swollen
They started milk feed a few days later
1ml an hour ....
That was a week ago, he is now flying at 60mls 5 times a day and I'm allowed to give him a few spoons of baby rice today
They are incredibly pleased with him, I think they didn't think it would be this fast to get his feeds up
It's all about him wanting and drinking the milk whilst he is on nutrition into vein, and then his bowel has to be absorbing the milk....
So 10 poos a day mean he's not absorbing it, Charlie does 2 on average
So as they up the milk, they reduce the nutrition into vein, he's now on 50% of his needs, so he'll be off it in a few days
Then we wait a few more days to make sure he's gaining weight, then they take out Hickman line (permanent cannula to vein)
... THEN WE GO HOME!!!!!
On the 13th July we've been here 2 months, so would be good to Get out before then
Thanks all for your posts, the Internet keeps you going when you are in a place like this without seeing friends and doing normal stuff or even having a nice sofa to sit on
Not taking things for granted again xx
rheannymac
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SO glad he's doing better!! Lovely update to wake up too. Big hugs to you all xxx
Karate Kid
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Glad to know things are progressing in the right direction Xx
newbie1984
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Wow I've just read this I'm pleased to see Charlie is doing better. Your an amazing mummy. Hang on in there x
Mellymoomin06
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Pleased Charlie is getting there hun! Big hugs xxx
fresh
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Big day today, Charlie got parole for the weekend for his good behaviour, so had the weekend at home, he's now on nearly full feeds
Saturday was a bad day, think he was unsettled and confused and was shouting at us most if the day
Sunday was amazing, he settled. He started 2 new things at home: rolling continuously ; one side of the room to the other and babbling da da da (da da da da da da etc. )
Daddy loves it of course
Tonight we are back in hospital, and tomorrow , he has to have put weight on, if he has, they'll whip out his Hickman line and we get to go home for good
If he doesn't we have to stay in til he does
So I'm cramming everything into him that he'll take
Our target feeds are above 600ml milk and 3 solid feeds, but they are saying he would ideally need 900ml milk, I'm only just managing to get 600 in him :/
Wish him luck!
Saturday was a bad day, think he was unsettled and confused and was shouting at us most if the day
Sunday was amazing, he settled. He started 2 new things at home: rolling continuously ; one side of the room to the other and babbling da da da (da da da da da da etc. )
Daddy loves it of course
Tonight we are back in hospital, and tomorrow , he has to have put weight on, if he has, they'll whip out his Hickman line and we get to go home for good
If he doesn't we have to stay in til he does
So I'm cramming everything into him that he'll take
Our target feeds are above 600ml milk and 3 solid feeds, but they are saying he would ideally need 900ml milk, I'm only just managing to get 600 in him :/
Wish him luck!
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