Another one! Updated :(

[ceris]

Oh good luck hun to you and baby... So glad she is fighting strong for you!! Xxx

 

[ForestLas80]

Hope it all went well today and u had another lovely scan with your little fighter xxx

 

[twilly]

Just updated but I think I've done it all wrong.
See first post in thread as I've updated in there.

 

[TiffanyJaynexo]

Oh hunnie, you're not being judged at all. You want to meet your baby girl and you want to give her a chance, what's wrong with that?

She's just like any other baby girl, she doesn't know what's going on, she didn't ask to be born into the world or not, she's extremely loved by her mummy and daddy who are so keen to meet her and hold her in their arms.

There is nothing wrong with that.

You hold onto as much hope as you want, this is your baby girl and your choices not anyone else's.
I'm glad you got to see her again, that must be wonderful! I can't wait to see my little girl again

xxx

 

[yorksmummy]

I think you are an amazing woman and your little girl is lucky to have parents who refuse to give up hope 100%. I would be doing exactly the same as you, I couldn't give up even when told there's no hope, I think medicine plays God too often and I think you're doing the right thing letting nature make the decisions. I truely wish there was a chance of a positive outcome to this for you as you deserve it. Don't let people make you feel wrong for making this decision, I think you're an inspiration. xx

 

[twilly]

Thanks guys.
We believe in God and His plan.
It just isn't very nice right now.
Sitting here wondering if I can face work tomorrow.

 

[TiffanyJaynexo]

I've just read up on Exomphalos and it is a correctable malformation.. even in severe cases.
The baby under-goes surgery and the survival rate is 90%.

Although the woman was just doing her job and giving you the truth, You should be getting all the information you can. xxx

 

[TiffanyJaynexo]

I agree with yorksmummy Stay strong.
We believe in God too, your little girl is in our thoughts and prayers. xxx

 

[AugustMum]

You are being incredibly strong and no-one has the right to judge you.
I cannot even begin to say what I would do in your situation.
You're creating a beautiful bond between you, your daughter and family and you will always have that. You will also get the amazing memories of being with your little girl, even if it is for a short time. These are things that may not have been possible if you hadn't of been as strong as you are at the moment.
Ignore anybody that seems to be going against your choice.

 

[twilly]

Thanks Tiffany.
She said they wouldn't consider operating due to the Edwards syndrome anyway, but said the exomphalos was really big.
There's also a heart defect too.
I go to each scan, thinking maybe God had performed a miracle and each time its just more bad news.
But thanks honey for your support and help xxxx

 

[twilly]

Thanks all.
I wouldn't judge anyone, whichever choice they made.
Neither is easy after all.
Xxxxx

 

[Lilelephant]

I am sorry to hear ur princess has these problems! I think u are amazing x u r in my prayers

 

[Jayceesmumma]

I'm so sorry to hear that
Don't ever feel like u have to do something you don't want to do.. I believe in gods way too, what will be will be and everything happens for a reason, good or bad. You are such a strong person and noone can judge you for any decision you decide to make.
You know you have all of our full support behind you no matter what.
You are an inspiration and your little girl is a fighter!
I wish u and your family all the love and luck in the world I don't think anyone could understand the heart break you are going through

 

[Jayceesmumma]

Why won't they even try operating?? I don't know alot about Edwards just that's it means theres extra chromosomes.. I don't know why they can't even try?

 

[jomc]

I go to each scan, thinking maybe God had performed a miracle and each time its just more bad news.

You are so amazingly strong hun, you and OH. I think the fact that you have gotten this far and your little girl has fought this strong and is still here, is a miracle from God in itself.
Nobody should judge you for any decision you make in life... who is to say what they would do in your situation? Stupid doctors need to get a bit of a reality check sometimes and realise that not everything comes down to statistics and medical science.
You are in my prayers hun xxxxxx

 

[twilly]

Why won't they even try operating?? I don't know alot about Edwards just that's it means theres extra chromosomes.. I don't know why they can't even try?

I know, I was so hoping they would try too, but she just said they would make her as comfortable as possible.

 

[ceris]

oh tilly i am so sorry to hear that, she is still fighting strong though, and you are both in all our thoughts. Miracles do happen every day and whatever happens, your little baby is already so loved by its parents xxx

 

[pinkyprincess]

Sending big hugs!

 

[Jayceesmumma]

Why won't they even try operating?? I don't know alot about Edwards just that's it means theres extra chromosomes.. I don't know why they can't even try?

I know, I was so hoping they would try too, but she just said they would make her as comfortable as possible.

It must be so devastating to hear that i could not make a decision like that for another womans baby.. they should try! They should try everything they can.. Im so sorry

 

[ChrissieCool]

Keeping you in my thoughts and prayers xxxx