Another one! Updated :(

[1986princess]

So sorry to hear about this hun xxx I think ur incredibly
Brave and strong on such a difficult decision. Wish there was more they could do for u all. But she is a fighter x so hoping and praying for you xxxx

 

[Nurse 26]

Oh no twilly, that's terrible, totally gutted for you

Don't know what to say but don't let people judging you get to you, at the end of the day these people have never been in your situation so its easy for them to think they know what's right, you are doing what's right for you and your little girl

Xxxxx

 

[smokey08]

oh sweetie, i totally admire you, you are an amazing person,
your little girl is so lucky to have parents like ye!

I would do the very same thing you are doing ,and god does work in mysterous ways....
thinking of you and your little fighter.
ye are in my prayers x x x x

 

[Susanne]

So sorry to hear that it wasn't good news. I think you are incredibly brave to do what you are doing, and whatever happens after your baby is born, you are giving her a wonderful life right now! That's what matters, not what anybody else thinks!

 

[positivity :)]

I can only repeat what the girls have said, so so sorry. I really hope a miracle does happen, you and your OH are in my thoughts xxx

 

[twilly]

The more I think about it, the crosser I get.
How dare she make me Feel like I am wasting time and money!!!
this is my daughters life!
She even asked me at the end of the appointment when would I like to come back.
You tell me, how am I supposed to know!
I actually couldn't speak as I had a lump in my throat the size of a tennis ball.
What a total prat.

 

[Lilmoomin]

I'm so sorry hun, I believe in miracles and I am so glad you are letting nature make the decision and not medicine. There's always hope & you obviously have a little fighter there! Huge hugs x x x x

 

[knopk@]

You are very brave and should not be judged for your decision at all, I hope you wont get the same person again. Very said to hear about other news, I do hope you and your OH will get some time with your LO.

As to them attempting a surgery, my guess is they will have to assess when she is here as you cant tell the extent of issues sometimes even with things like heart problems

Dont let anyone make you feel bad, you are very strong for deciding to go through, I dont think many people would have.

 

[Jayceesmumma]

The more I think about it, the crosser I get.
How dare she make me Feel like I am wasting time and money!!!
this is my daughters life!
She even asked me at the end of the appointment when would I like to come back.
You tell me, how am I supposed to know!
I actually couldn't speak as I had a lump in my throat the size of a tennis ball.
What a total prat.

I dont blame you for being cross at all!!! I would be so upset!! as any mother would be in your position! Id made a huge complaint if i were you.. but thats me lol i cant let things go lol!

End of the day you know what your doing and she needs to respect your wishes.

 

[Cazza]

Oh Twilly....

No one should make you feel like that - how dare she. The only people who can possibly understand what you are going through is you and your OH.

Bless you xx

 

[Sarah W Baby Belly]

I really don't know the best thing to say, so just sending loads of hugs

 

[Laura_C]

Oh honey, I'm so so sorry that anyone has to go through this heartbreak

I know a little of what you feel sweetie as we were told during a growth scan that our little boy had no chance of survival. This was very sudden and all previous scans/checks had been normal. I felt there was something wrong though and took myself to triage. They did a scan as a precaution the following day and found he only had about 48 hours left due to the stress on his heart and was showing signs of distress. His movement was minimal and we were told if we left it any longer we would be facing a stillbirth. We hoped there was a solution but were told they wouldn't even give a percentage for survival as it was too late, things had gone too far. I just hoped I was in some horrible nightmare and I would wake up

They said that in medicine they never say never and that miracles do sometimes happen so his only chance was emergency delivery, he was 30+2. They hoped to find the cause of his condition and treat it but they never did, even now 8 months after his death we don't know what caused his Hydrops. It's so hard

He survived for almost 3 days and those 3 days were very special but the hardest of our lives. I got to talk to him,sing to him, he squeezed my hand and got to see his mummy, daddy and family. I finally got to hold him as he took his last breaths, as hard as it was I was so glad I did. We bathed and dressed him and took some lovely keepsakes and have some pictures. It's still too raw though.

For us it was such a shock as it was all so sudden and being told he was healthy otherwise kills me. It took me 3 months to get over the shock let alone begin the grieving process. If you ever want a chat honey or anything please PM me anytime. I find in incredible that they won't try to help her as much as they can, it's just not right. Surely they have to try! They did try a few things with Ethan but all to no avail and at the end he was just kept comfortable.

I think maybe it would be useful to have a 'complications in pregnancy' section to the forum so that people can talk about these things as they are going through their pregnancy.

I'm so so sorry honey, I'm here if you need to let off steam or anything xxxxx

 

[Jayceesmumma]

I agree on the additional section for the forum.. it will help people find others in the same boat..

Sorry to hear about your child.. and i agree they should try harder.. it would make the whole thing worse (if it can) if they didnt try hard enough.. do you know what i mean?

 

[DaisyPurple]

You are in my prayers and thoughts, Twilly, xx

Sent from my HTC Desire S using Tapatalk

 

[twilly]

Hi Laura
Thank you and I'm so sorry to hear that you went through that.
It must hurt so much.
I will pm you some time.
I have asked twice for a section on gestational complications.
It's hard to know where to post.
On a particularly bad day, I posted in preg and loss as I didn't want upset anyone nd put a downer on things.
But then I just thought, it is what is it and I will continue to post here.
Hugs to you and thanks for sharing xxx

 

[twilly]

I really feel a separate section would be great, but was told on the second request that they have alot to consider before making changes.
I have browsed elsewhere but it's not the same and this forum is so well run and moderated, I didn't want to move.

 

[cosmicgirl]

x

 

[Olive]

Thinking of you xxxx

 

[Jayceesmumma]

On a particularly bad day, I posted in preg and loss as I didn't want upset anyone nd put a downer on things.
But then I just thought, it is what is it and I will continue to post here.
Hugs to you and thanks for sharing xxx

Don't ever feel like u have nowhere to post and you never put a downer on things, you make us all realise how lucky we are..

 

[Laura_C]

I know exactly how you feel Twilly, I was always reluctant to post for fear of upsetting or offending anyone. I find it is still quite a taboo subject and I hate to make people feel uncomfortable. But like you say, it is what it is and unfortunately these things do happen. I never imagined I would ever lose a child like that, even now sometimes it feels like it happened to someone else. Since I lost Ethan though I realised it's not quite a rare as I first thought, it's just people don't really talk about it.

Reading some of your posts I think you are an amazing woman who will make a fantastic mummy, your little girl is so lucky to have a mother with such strong spirit and love for her - your doing your daughter proud

I just hope when she arrives they give her the best chance they can, she sounds like a fighter and they surely can't deny her care xxxx