well just to update i prob wont be on the forum much longer, but i wish you al lthe best and happiest pregnancys ever that you can have, we went for our late first scan yesterday and sadly our baby has anencephaly (im 15 weeks mon as thought) which means that the baby would only survive for a very short time if it lasted till full term and was born. every parent has the right to a decision and i respect those who choose to continue their pregnancy but we feel no option of viable life to our baby (as can be mins to hours to days maximum if it manages to survive the birth) and are now making the hardest most upsetting choice/ decision of our lives deciding whether to have an induced labour or a surgical removal we have until monday to decide as the procedure needs to be done next week should we choose surgical, we are weighing up the options and please dont condemn us whatever we choose iv never been so upset in my life or known my husband to be so heartbroken please know i took folic acid and did everythign i was able to to ensure a healthy pregnancy and we both loved this fetus very very much. we are doing what we feel is right and will never condemn anyone for thier opinions but cannot take critiscism now at such a hard time. many thanks to all those who have been supportive and helpful during my pregnancy so far and for the short time we have been with the forum. x
as id never heard of it either before having it thought should edit post, its when babys skull doesnt form correctly so the brain is exposed and cannot continue to form properly, the baby has beating heart etc but often has other complications if allowed to go to term many enver leave the hospital if survive the birth, it is linked to folic acid intake but is not known why it occours for sure its similar to spina bifida but more fatal. it is often advised to terminate. it is not usually found or diagnosed until 20 week scan but can be detected from 13 weeks. we had it confirmed by 3 people looking at our scan but are going to ask to confirm it by having the scan shown and explained to us too. it only affects one in a thousand babies a year. x
as id never heard of it either before having it thought should edit post, its when babys skull doesnt form correctly so the brain is exposed and cannot continue to form properly, the baby has beating heart etc but often has other complications if allowed to go to term many enver leave the hospital if survive the birth, it is linked to folic acid intake but is not known why it occours for sure its similar to spina bifida but more fatal. it is often advised to terminate. it is not usually found or diagnosed until 20 week scan but can be detected from 13 weeks. we had it confirmed by 3 people looking at our scan but are going to ask to confirm it by having the scan shown and explained to us too. it only affects one in a thousand babies a year. x
Last edited: