What happens if theres no reason for recurrent MCs?

[PeanutButter]

If i have every test and it all comes back that theres nothing wrong with me, what will happen from there?


xx

 

[phonixgirl]

Have you had your NK cells tested hun?

 

[lisey]

I had every test and all fine. We were told just to carry on as we were. They did offer extra monitoring though so more scans and repeating the bloods once pregnant to see if anything changed. We did this first pregnancy after results but not this one as we weren't happy with the care previously. I was on progesterone but that was because of IVF xx

 

[maybe baby]

Hello Hun,

So sorry for your recent losses. 😢

Can I ask when you had all your m/c as in what week.

Also did you ever have your bloods done?

Just wondered if they may be due to impaired implantation like mine before I had my septum removed.

I've got my first recurrent miss appointment tomorrow. I've done most of the tests 6 years ago bar karyotyping so will be interesting to see what's changed.

I've a friend who's seeing a recurrent miss consultant at St Mary's so we compare what's said to us.

I'll keep you posted with any info I have.

When do you have your tests?

Xx

 

[blacksnow]

lisey- there lots of reasons why mcs occur, even poor sperm quality. Have you tested vit D level and done karyotyping? During the first trimester, the most common cause of miscarriage is chromosomal abnormality (karyotyping) Good luck

 

[lisey]

Oh I know that. We were based at St Mary's in London who are renowned for their knowledge and care, they do every test apart from killer cells and we got the all clear, so considered 'bad luck' ( their words). After multiple miscarriages and 5 years ttc, I had researched every possible reason for miscarriages. I don't know if the rest of the message was for me or peanut butter? But we had karytyping done and I supplemented with vit d. Didn't have the testing, just took it as read about the benefits x

 

[PeanutButter]

They've only gave me the auto immune ones atm. Been waiting 2 months for a referal from gyne to specialist :/

First mc was 8W
Second was 6/7 w
Third was 5W
Forth and fifth was chems 4/4 & half.
Recent one was twins one twin never grew was just a yolk in sac i think, other one got to 8+1, had a HB but stopped growing at 5+6. Which is the same as what happened with my first... HB till 7 weeks but didnt grow from 5+6/7, im not sure how long the last one had a HB for, was fine at my 6 week scan.

I will be getting NK cells tested, ive been told about someone in Coventry, so will probably go there.

What do they do at the first appointment, with the specialist people? My gyne is awful, first he said when you do get pregnant with finger quotes (I dont know how being pregnant has finger quotes, because your classed as preg as soon you get a bfp so fuck him!) Then he wasnt even going to refer me to the specialist!!! but the consultant told him to because at that point i had, had 5 MCs.... then said all i need to do is keep trying and eventually one will stick .... and to top it all off, ive been waiting for 2 months for my referral letter with my appointment on, and they hadnt even done it!!!! Called last thursday lady at Bham hospital said they havent had anything about me, called the gyne they said yeah well you need to see GP and they need to refer you but at my last gyne appointment i asked if i would get it trough the post (which i do everytime theres another appointment) and he said yes, so i went to my gp, she said oh i should have had a letter sent out to me asking if i still wanted to go there (why the hell wouldnt i??) she said shes sorry and shell send it off asap.She said she dont know why my gyne didnt tell me i needed to see my gp about it!! FFS, theyre just fking me about too much. People have told me to write to newspapers and stuff with how badly the nhs have treated me...
With my lastest pregnancy, i was told I need a scan at 6 weeks, but my gps wouldnt send me for one, saw the midwife she said its up to the hospital to choose when they scan you, the hosp decidedo just treat me like a normal person and have a scan at 12 weeks, gp wouldnt send me for progesterone or hcg tests, i was told if i find the pregnancy isnt viable i need to have a D&C so they can send all tissue to lab for testing, waited 6 hours to be told they would give me a D&C in a few days, but the lab wont test the tissue!! I passed everything after i got home, took the sac to the early pregnancy unit and they sent it to the lab (why the fk couldn't the surgical team do that?!) Everyone just keeps fking us about.

Sorry long rant... Just feeling fed up with it now.

 

[phonixgirl]

Awwww honey

The lady in Coventry is really good. They even saw my last IVF chemical as a pregnancy and explained it was a biochemical miscarriage. You sit down with her and discuss your history. Then you go and have a biopsy of your uterus taken. They look at a lot of things in the results as well, so it's not just the uterine NK cells. It's definitely worth the money. Xx

 

[Elspeth]

PB, your story is so heartbreaking. You've been through so much as it is with all your losses. That fact you've been messed about on a grand scale is terrible. You have every right to be absolutely furious.
Can your GP speed up your referral to the specialist?
Can't offer any useful advice or experience. But sending big hugs.

I hope the wait isn't too long now. You need some support and answers.
In the meantime can you distract yourself with Xmas coming up.
Hang on in there, you will have a successful pregnancy one day. Xxxx

 

[PeanutButter]

My gp said she'd write a note to specialist asking for it to be rushed as I've waited with months already. Phoned bham women's hospital, they said they had it but the women who deals with it is away... so there's only one person who deals with all referrals in the west midlands?? She said I should here within 10 working days, so if i hear nothing by Friday will call them again. Xx

 

[miamia]

PeanutButter - I am sorry. Have you been suggested embryo testing (PGS NGS)? And what about male factor, as poor sperm quality might cause recurrent mcs. All the best xx

 

[PeanutButter]

The docs keep saying it's nothing to do with my hubby as his part is done once I'm pregnant... I mean I'm
Not a doctor or have much knowledge of infertility but I know that he needs to be tested to ffs.
I watched a documentary last night in infertility and was really deflated, basically nk cells doesn't attack a fetus and having Pgs is just a way to make money and it doesn't improve chances of conceiving or carrying to full term blah xx

 

[lisey]

If the documentary was quite one sided, then I wouldn't pay attention. In some cases I am sure it is offered unnecessarily to make money but also pretty sure it does have a positive use in some cases. My fertility doctor mentioned it to us as at the time we had had 3 miscarriages but he did say it wasn't something he would push too much for us. We didn't go ahead with that as we had all our miscarriage testing at that stage and all was clear so we knew it was likely that there was no reason in particular for our miscarriages. We had also had karyotype bloods done so knew that was ok too.
Your OH can have DNA fragmentation done on SA to look for abnormalities xx

 

[Clementine]

Peanut I've had 2mmc's & 1mc we've lost 4 babies, based on feedback from my consultant I would definitely get your OH's sperm checked and get his sperm tested for DNA fragmentation as it can cause a higher chance of miscarriage due to chromosome issues with the embryo.

Also I don't know if you have had your Thyroid checked ? (Blood tests are TSH , Free T4 , Free T3 & Thyroid Antibodies)
An untreated thyroid condition can increase likelihood of MC.

We were told that most MC's are down to a genetic/chromosome issue with the baby so they are not strong enough to make the journey.

Things that might help egg / sperm quality Vitamin D, Folic Acid, Zinc, Omega 3,6,9, Vitamin C, Uniquinol (form of Co Q10) also a wheat free diet is supposed to help ?

 

[PeanutButter]

Were taking all the vitamins, ive also put hubby on a higher folic acid aswell now heh.
You know i said that they need to check my thyroid and they sill haven't, my dad and some cousins (on my dads side) have thyroid problems, my mom and her sister both have diabetes still not checked me for that either...
Eveerytime i have a private scan they say it looks like i have pcos but NHS say no it doesnt and wont give me a blood test hmm.
Hoping the specialist will just do all tests without me needing a reason, still no letter today x

 

[Clementine]

Were taking all the vitamins, ive also put hubby on a higher folic acid aswell now heh.
You know i said that they need to check my thyroid and they sill haven't, my dad and some cousins (on my dads side) have thyroid problems, my mom and her sister both have diabetes still not checked me for that either...
Eveerytime i have a private scan they say it looks like i have pcos but NHS say no it doesnt and wont give me a blood test hmm.
Hoping the specialist will just do all tests without me needing a reason, still no letter today x

Hi Peanut if your doctor refuses could you afford to have them done privately, my father also had a thyroid problem, plus his sisters / my cousins and my sister has it and my niece and nephew also have it. They should definitely check it for you if you have a family history and they should also check your Vitamin D & B12 as if you have issues with your bowel you may not be absorbing your vitamins correctly.

Also have they also done your hormone tests on Day 3 (FSH, Estradiol and LH) and Progesterone on 7 days after your ovulation day / 7 days before period due. Did they put you on Progesterone from positive bfp ?

 

[PeanutButter]

Nope had nothing... I went to my gp as soon as i got a positive test, asked for progesterone and HCG tests she said no theres no point. I paid privately to have them done, then the private place gave me a prescription for progesterone which i started at 6 weeks.

The FSH sounds familiar, but it wasnt done on a certain day of my cycle if its what im thinking about... and it was done with the auto immune test, thats the only ones ive had done... I did bring up testing at certain days to my gyne he said i dont need that and only people who struggle to get pregnant need those :/
I have IBS which ive also told them repeatedly but 'thats ok' apparently.
xx

 

[PeanutButter]

Got a positive pregnancy test today, straight after a mc, think will be a chemical though. Argh give up. Xx

 

[lisey]

What makes you think its a chemical? I really hope its not xx

 

[PeanutButter]

To too faint for 11dpo. I know some people don't get faints until after period etc, but I've always had a decent line by now part, even when I had my other 2 chems I had better lines than this lol. I had implantation bleeding at 6dpo, so not holding out any hope xx