Sage, please take him to the clinic, i am not an expert but based on your photo it looks more than mild to me. There is nothing to lose by going, its a free consultation and at least you will get all the information to be able to make a decision about your little boys head.
Plagio & Brachy support thread
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Gem & Leland
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good luck hun 
Gem & Leland
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19th ? thats the same day as leland ?
do you know what your gonna do if they say he needs / would benefit from one ? can u raise the 2k ok ? maybe we need some joint fundraising for both of them , i just wish my car would sell
do you know what your gonna do if they say he needs / would benefit from one ? can u raise the 2k ok ? maybe we need some joint fundraising for both of them , i just wish my car would sell
I really dont no how we'd raise that sort of money even with family help 
Im stil hoping they'll say it could correct itself as ive been told countless times by GP's and HV's but then again the first time my health visitor said it was nothing 
Ky's appointments at 8.30 so daddy can come to. I hope your little mans goes well! keep me informed or PM me if you wanna talk about it!!
Im stil hoping they'll say it could correct itself as ive been told countless times by GP's and HV's but then again the first time my health visitor said it was nothing Ky's appointments at 8.30 so daddy can come to. I hope your little mans goes well! keep me informed or PM me if you wanna talk about it!!
Gem & Leland
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can we hold a massive pregnancy forum fundraiser for ky and leland lol
I've got a Dr's appointment for tomorrow afternoon to ask his advice about my LO's flat head - will let ya know what is said....
But for my own info - what is the name of the company that you're all getting your LO's consulation for regarding the helmet, as I may be needing this too.
Cheers.
But for my own info - what is the name of the company that you're all getting your LO's consulation for regarding the helmet, as I may be needing this too.
Cheers.
Gem & Leland
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these are the starband people
http://www.ossur.co.uk/
and these are the LOCband people
http://www.londonorthotics.co.uk/plagiocephaly.html
im purely going to LOCband because the clinic is alot easier to get to then starband
good luck xx
http://www.ossur.co.uk/
and these are the LOCband people
http://www.londonorthotics.co.uk/plagiocephaly.html
im purely going to LOCband because the clinic is alot easier to get to then starband
good luck xx
Well I went to the Dr's this afternoon - and she was actually very nice. Because Oliver has a preference for looking to the right as well as the flat head she said she wanted to refer him to a Paediatrician for a more specialist opinion.... so I have an appointment at my local hospital in 3 weeks time.
Does anyone who's already had a helmet fitted to there baby know if BUPA or other health insurances pay out for this sort of thing???
Does anyone who's already had a helmet fitted to there baby know if BUPA or other health insurances pay out for this sort of thing???
Gem & Leland
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http://www.ahead4babies.com/PrivateInsu ... fault.aspx
here says they might review on a case for case basis , wish mine would
here says they might review on a case for case basis , wish mine would
My son was born at 35 weeks and he also suffered with plagiocephaly.
We went ahead with helmet treatment and it was the best £1800 we've spent. Our son was only borderline for treatment but we felt that opting for the treatment was the best way forward as the flatness on one side was very visible.
He was only in it for 7.5 weeks. We started treatment when he was 7.5 months old, we first went to Starband at Leeds when he was 5 months old and I wish that we'd gone ahead with treatment at that point.
The earlier you start the better results people seem to get.
You will find a tremendous amount of support on the forum links from the ossur site (STARBAND). The people at the Starband clinic are fantastic. They only recommend treatment if they believe it's of benefit. The advised us to continue with repositioning after our first consultation because we were seeing improvements when you looked down at my sons head from the top down. There is no hard sell or anything like that.
You should contact your local papers and get some publicity, somebody did in our local area and got a huge response in terms of donations from companies/individuals to help pay for the helmet. Do fundraising, you will be amazed at the response.
As a Mum whose been through the worries and heartache of plagio, my advice to you Mums is please don't be influenced by others who say it's cruel etc or listen to doctors who say it will correct itself. Very few cases do. Doctors always say it will sort itself out. That's their standard response as they believe it's a cosmetic problem.
Go with what you feel is right for you and your child, you are only doing the best for them.
My son didn't have any problems taking to the helmet it was Mummy and Daddy who had to get used to it. But you start to see improvements rapidly and that reaffirms that it's the best thing you could ever have done for them. Bizarrely, you get to a point that you don't want to take it off because you worry that it will regress when you get to the end of the treatment. It won't though.
My son has a lovely headshape now but his ear is still misaligned. Nobody notices though.
If anybody wants to pm me, feel free to do so.
We went ahead with helmet treatment and it was the best £1800 we've spent. Our son was only borderline for treatment but we felt that opting for the treatment was the best way forward as the flatness on one side was very visible.
He was only in it for 7.5 weeks. We started treatment when he was 7.5 months old, we first went to Starband at Leeds when he was 5 months old and I wish that we'd gone ahead with treatment at that point.
The earlier you start the better results people seem to get.
You will find a tremendous amount of support on the forum links from the ossur site (STARBAND). The people at the Starband clinic are fantastic. They only recommend treatment if they believe it's of benefit. The advised us to continue with repositioning after our first consultation because we were seeing improvements when you looked down at my sons head from the top down. There is no hard sell or anything like that.
You should contact your local papers and get some publicity, somebody did in our local area and got a huge response in terms of donations from companies/individuals to help pay for the helmet. Do fundraising, you will be amazed at the response.
As a Mum whose been through the worries and heartache of plagio, my advice to you Mums is please don't be influenced by others who say it's cruel etc or listen to doctors who say it will correct itself. Very few cases do. Doctors always say it will sort itself out. That's their standard response as they believe it's a cosmetic problem.
Go with what you feel is right for you and your child, you are only doing the best for them.
My son didn't have any problems taking to the helmet it was Mummy and Daddy who had to get used to it. But you start to see improvements rapidly and that reaffirms that it's the best thing you could ever have done for them. Bizarrely, you get to a point that you don't want to take it off because you worry that it will regress when you get to the end of the treatment. It won't though.
My son has a lovely headshape now but his ear is still misaligned. Nobody notices though.
If anybody wants to pm me, feel free to do so.
Gem & Leland
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can i just say good luck to leland and kyran for there assessment tomorrow
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I hope it all works out well for you and little Leland in the end Connor also has plagiocephaly but I think it has improved in the last month with constant encouragement and repositioning and he now sleeps much more often happily on the side that he is supposed to (his head is a bit flat on his back left.) If you look down from the top of his head you can see that his ears are still a little out of alignment but it has improved alot with all the tummy time and I moved his cot around so that he had to move his head to the correct side to see me through the cot bars! That worked a treat as he won't go to sleep if he can't see me in the bed beside him! I think that Leland's head could still correct itself and spare you all that money! But then again, I'm like you and I would probably do everything I could to help my baby. Best of luck hun xx
Connor also has plagiocephaly but I think it has improved in the last month with constant encouragement and repositioning and he now sleeps much more often happily on the side that he is supposed to (his head is a bit flat on his back left.) If you look down from the top of his head you can see that his ears are still a little out of alignment but it has improved alot with all the tummy time and I moved his cot around so that he had to move his head to the correct side to see me through the cot bars! That worked a treat as he won't go to sleep if he can't see me in the bed beside him! I think that Leland's head could still correct itself and spare you all that money! But then again, I'm like you and I would probably do everything I could to help my baby. Best of luck hun xxJust got back and kyran had his head measured and the conclusion to the results is hes just into the severe brachycephaly catagory. He will need a helmet fitted for four months at least if we proceed for treatment. its just coming up with the money.
Feel kinda bad because the consultant thinks it was caused by him being back to back and because i was in labour for so long. stupid i know but makes me feel guilty as if my body had be quicker we might not be going through this
hope leland is ok
He will need a helmet fitted for four months at least if we proceed for treatment. its just coming up with the money. Feel kinda bad because the consultant thinks it was caused by him being back to back and because i was in labour for so long. stupid i know but makes me feel guilty as if my body had be quicker we might not be going through this
hope leland is ok
Gem & Leland
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were back too , severe plagio and mild brachy ( 17mm plagio 89% brachy)
she said , why people look at leland and think his fine is because the flatness is kinda round, not like someone has took a shovel to his head , but the measurments speak for themselves
id honestly started to convince myself that nothing was wrong , i even said to the girl i know its only mild but where after advice etc !
she explained that we should have seen results from repostioning within 4-5 weeks but weve been doing it for 10 , the only change in shape ( apart from getting worse) is the skull bone at the back has begun to 'pop' out but this is due to neck muscle building not repostioning .
weve decided to go ahead its alot of money but i couldnt live with myself if it didnt correct , if in the future he knows we could have done something but didnt ,
so his had his laser scan ( will uload pics later) and his fitting is the 3rd july . i really hope weve done the right thing , if repostioning would have worked i think we would have continued doing that but it hasnt and chances are he would have got alot worse by the time he will be 6 months , resulting in longer in the helmet , at mo it looks like 3-6 months .
id like to use this post as a diary if anyone doesnt mind ? got a feeling emotions are going to be all over the place in the next few weeks
sage , im sorry his servere too , were gonna fund raise like mad , and ask familly for help where we would never have , weve paid deposite by credit card 
are u on msn ? if u wanna chat pm me xx
she said , why people look at leland and think his fine is because the flatness is kinda round, not like someone has took a shovel to his head , but the measurments speak for themselves
id honestly started to convince myself that nothing was wrong , i even said to the girl i know its only mild but where after advice etc !
she explained that we should have seen results from repostioning within 4-5 weeks but weve been doing it for 10 , the only change in shape ( apart from getting worse) is the skull bone at the back has begun to 'pop' out but this is due to neck muscle building not repostioning .
weve decided to go ahead
its alot of money but i couldnt live with myself if it didnt correct , if in the future he knows we could have done something but didnt , so his had his laser scan ( will uload pics later) and his fitting is the 3rd july . i really hope weve done the right thing , if repostioning would have worked i think we would have continued doing that but it hasnt and chances are he would have got alot worse by the time he will be 6 months , resulting in longer in the helmet , at mo it looks like 3-6 months .
id like to use this post as a diary if anyone doesnt mind ? got a feeling emotions are going to be all over the place in the next few weeks
sage , im sorry his servere too
, were gonna fund raise like mad , and ask familly for help where we would never have , weve paid deposite by credit card are u on msn ? if u wanna chat pm me xx
