LYLLJellyTots
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I have started this thread as a few of you will be aware I have had my second stay in hospital within a few weeks ( I am currently only 21w + 4 days) and things seem to be going from bad to worse. I had a moment earlier when I finally realised but how serious things are getting and how scary things are getting really. For those of you who know about my first pregnancy and the problems that were faced you will understand my fears. For those of you that don't, you can read my first journey here - http://www.pregnancyforum.co.uk/hig...ancy-gestational-hypertension-asthmatics.html
High risk factors at the moment
1. Gestational Hypertension (Severe starting at 21 weeks this pregnancy *Didn't hit severe levels until after 30 weeks with DS)
2. High BMI
3. Allergies to Aspirin (Used to help lower BP and risk of blood clots)
4. Allergies to Fragmin / blood thinning medications
5. Allergies to Labetalol and other ace inhibitors / beta blockers / blood pressure medications that work in the same way.
6. Familt history of DVT (My father has had 2 and is on warfarin for life, my maternal grandmother had one shortly before she passed away)
7. Now on Nafedapine ( Blood pressure meds) which stop contractions meaning I will have to have a section? (To be confirmed on Friday)
8. Suspected DVT after last section
9. Family history of pre-eclampsia / Hypertension
Possible outcomes?
1. The Nafedapine works, my BP stays under control & I can cook Jellytot until 37 weeks + and she will be delivered safely (Be it by VBAC or Section)
2. The Nafedapine doesn't keep my BP low enough, I am moved onto a different drug that I dont react to & I can cook Jellytot until 37 weeks + and she will be delivered safely (Be it by VBAC or Section)
3. The Nafedapine doesn't keep my BP low enough, I am moved onto a drug that I react to and end up in anaphylactic shock with crash teams around me and my throat closing again with another suspected blood clot on my lungs *This is my worst nightmare *
4. The Nafedapine doesn't keep my BP low enough, other drugs dont work and they have no option but to deliver Jellytot Early
5. Nothing works and I develop a DVT anyway and Jellytot is at risk as well as my own life.
6. I am not even going into the other possibilities with gestation hypertension on its own such as Intrauterine death / Intrauterine growth restriction / Placental abruption, this is not an option Jellytot needs to remain safe
Now I know some people will see that as being pessemistic but I am trying to be realistic. I know what my body is like in pregnancy and I know how I react to stupid drugs. It was the scariest thing I have ever been through and probably why I have blocked it out of my mind until now. Hopefully the Nafedapine will work and as long as Jellyot is safe and I am still here to look after my kids that is the main thing. I know premature birth is a real possibility the consultant was talking me through this before I was let out of hospital on saturday. On top of this we still dont know if Jellytot's heart is okay from the high downs syndrome risk and my mind feels like a bit of a mine field right now. I am going to ask them to remove my lady bits or tie my tubes if they tell me I have to have a section. I know some of you will think this is drastic for my age (26) but I have been blessed with the babies I have and I am not willing to risk leaving them without a mommy. Now for the positivity.
Things that are being done to help.
1. Now under consultant care weekly
2. Seeing midwife every 2 weeks to be monitored.
3. Now on clexane blood thinning injections (Hoping I don't react to them)
4. On AdCal tablets as these are found to help lower BP (Been on these since 16(ish) weeks.
5. Scans at 23 / 28 / 32 weeks
6. Now on Nafedapine which so far seems to be doing okay although I am extremely tired & still have a constant headache.
7. Will maybe have to have Blood pressure profiles done often at ANDU again as with last pregnancy. This is not usually started until 24 weeks but again will check this on Friday.
Realistically as the hypertension has started earlier and higher this time (It started around 24 weeks with DS but didn't hit severe until about 30 weeks) it is likely to be worse not better and if it comes to it they will deliver Jellytot if there's nothing else they can do to save me. Therefore I am setting goals.
1st Goal - 24 weeks
2nd goal - 27 weeks
3rd goal - 30 weeks
4th goal - 33 weeks
5th goal - 36 weeks
6th goal - 38 weeks
I have done this thread more to get things straight in my own head more than anything. Sometimes you have to face fear head on in order to over come it and failure is not an option. My babies need me, my Jellytot, my step son and my son and I need to be here for them. I wish anyone going through anything like this lots of love and lots of thoughts, it is awful to spend your pregnancy worrying and in hospital rather than 'glowing' and being happy. That said, I realise just how lucky I am to have my babies after two and a half years of trying in the past with no luck and having angel babies too. No matter what I will fight, and I will fight for my children xxxx
High risk factors at the moment
1. Gestational Hypertension (Severe starting at 21 weeks this pregnancy *Didn't hit severe levels until after 30 weeks with DS)
2. High BMI
3. Allergies to Aspirin (Used to help lower BP and risk of blood clots)
4. Allergies to Fragmin / blood thinning medications
5. Allergies to Labetalol and other ace inhibitors / beta blockers / blood pressure medications that work in the same way.
6. Familt history of DVT (My father has had 2 and is on warfarin for life, my maternal grandmother had one shortly before she passed away)
7. Now on Nafedapine ( Blood pressure meds) which stop contractions meaning I will have to have a section? (To be confirmed on Friday)
8. Suspected DVT after last section
9. Family history of pre-eclampsia / Hypertension
Possible outcomes?
1. The Nafedapine works, my BP stays under control & I can cook Jellytot until 37 weeks + and she will be delivered safely (Be it by VBAC or Section)
2. The Nafedapine doesn't keep my BP low enough, I am moved onto a different drug that I dont react to & I can cook Jellytot until 37 weeks + and she will be delivered safely (Be it by VBAC or Section)
3. The Nafedapine doesn't keep my BP low enough, I am moved onto a drug that I react to and end up in anaphylactic shock with crash teams around me and my throat closing again with another suspected blood clot on my lungs *This is my worst nightmare *
4. The Nafedapine doesn't keep my BP low enough, other drugs dont work and they have no option but to deliver Jellytot Early
5. Nothing works and I develop a DVT anyway and Jellytot is at risk as well as my own life.
6. I am not even going into the other possibilities with gestation hypertension on its own such as Intrauterine death / Intrauterine growth restriction / Placental abruption, this is not an option Jellytot needs to remain safe
Now I know some people will see that as being pessemistic but I am trying to be realistic. I know what my body is like in pregnancy and I know how I react to stupid drugs. It was the scariest thing I have ever been through and probably why I have blocked it out of my mind until now. Hopefully the Nafedapine will work and as long as Jellyot is safe and I am still here to look after my kids that is the main thing. I know premature birth is a real possibility the consultant was talking me through this before I was let out of hospital on saturday. On top of this we still dont know if Jellytot's heart is okay from the high downs syndrome risk and my mind feels like a bit of a mine field right now. I am going to ask them to remove my lady bits or tie my tubes if they tell me I have to have a section. I know some of you will think this is drastic for my age (26) but I have been blessed with the babies I have and I am not willing to risk leaving them without a mommy. Now for the positivity.
Things that are being done to help.
1. Now under consultant care weekly
2. Seeing midwife every 2 weeks to be monitored.
3. Now on clexane blood thinning injections (Hoping I don't react to them)
4. On AdCal tablets as these are found to help lower BP (Been on these since 16(ish) weeks.
5. Scans at 23 / 28 / 32 weeks
6. Now on Nafedapine which so far seems to be doing okay although I am extremely tired & still have a constant headache.
7. Will maybe have to have Blood pressure profiles done often at ANDU again as with last pregnancy. This is not usually started until 24 weeks but again will check this on Friday.
Realistically as the hypertension has started earlier and higher this time (It started around 24 weeks with DS but didn't hit severe until about 30 weeks) it is likely to be worse not better and if it comes to it they will deliver Jellytot if there's nothing else they can do to save me. Therefore I am setting goals.
1st Goal - 24 weeks
2nd goal - 27 weeks
3rd goal - 30 weeks
4th goal - 33 weeks
5th goal - 36 weeks
6th goal - 38 weeks
I have done this thread more to get things straight in my own head more than anything. Sometimes you have to face fear head on in order to over come it and failure is not an option. My babies need me, my Jellytot, my step son and my son and I need to be here for them. I wish anyone going through anything like this lots of love and lots of thoughts, it is awful to spend your pregnancy worrying and in hospital rather than 'glowing' and being happy. That said, I realise just how lucky I am to have my babies after two and a half years of trying in the past with no luck and having angel babies too. No matter what I will fight, and I will fight for my children xxxx
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