Anyone else TTC and Living with ME?

[WILMAFLINSTONE]

Hi, I was just wondering if anyone else here who is TTC has ME?

Would be good to talk to someone else whos also dealing with the normal stuff that comes with TCC but also to talk about the affects of ME on the whole situation?

Hope its ok to ask about this here.....xx

 

[Rosie's Mummy]

I just wanted to wish you well, I have no experience of this nor do I know anyone with ME - good luck with TTC and hope that ME doesnt impact on you too much whilst TTC too.

 

[Toonlass]

I've never heard of ME so i just looked it up. Sounds awful good luck TTC xx

 

[WILMAFLINSTONE]

Thanks ladies......Thanks for the reply and best wishes RM .....
Hey Toonlass.....thanks for taking the time to look it up.....yeah its a pretty debilitating illness but I have good and bad days so try and make the most of the good ones....took 2yrs to decide to try for a baby as the impact on my previously healthy hectic life has been immense but we thought well its now or never as were both not getting any younger....so fingers crossed it doesnt take long and despite everything thats going on with my health we can still indeed get pregnant!

Just wondered if anyone else had ME and what they were feeling while TTC......

Best wishes to you both.....and congrats xxx

 

[titch]

HIya

I had ME about 5 years ago. You have my massive sympathies. I ended up doing a massive life overhaul. I moved back with my parents, worked part time. Ate an organic processed food free diet (funding by good old parents) and after a year I started exercising a bit. Last year I ran the 5k race for life. I feel like my old self again but I know I have to be careful. I couldnt get out of bed christmas day at my worst, I know if my parents hadnt supported me like they did I wouldve got worse. When you havent any energy you cant bring yourself to make an organic salad, I used to skip most meals or drag myself to make toast. I was living alone so got into a viscious cycle.

I still work part time, Im so afraid of wearing myself down. I make sure I eat healthy still although I occasioanlly slip up I know when Im starting on that slippery slope and take action. I used to be a massive party animal and I rarely go out now. Im pregnant now and to behonest now that Im in 2nd trimester I feel amazing. Im worried about what will happen when the baby is born but my OH and my parents are so supportive. Im already doing little things to make sure I dont get exhausted, Im buying blackout blinds for my bedroom so that I can sleep in the day if I need to. My grandma has offered to buy me a fridge freezer and Mum and I went shopping for one the other day, we looked for the one with the biggest freezer space. My Mums planning to come down once a week and help me cook up my healthy meals and then freeze them so I can just microwave the rest of the week.

If I eat shop bought ready meals within a week my health starts to suffer. I think its all the chemicals and preservatives that shocks my body into it.

Well Ive just ranted on for a long time. You have my sympathies, its a horrible condition, and very very miserable getting the blood tests back 'normal'. I remember lying in bed at my parents house and ringing my doctor for results and being told "youre fine!". I really really was not fine. No doctor helped me recover, me and my parents worked it out ourselves. I havent been off sick from work for 10 months too! for me!

Good luck, make sure you look after yourself. xxx

 

[Rosie's Mummy]

Wow - Im speechless

 

[emmaandamyleigh]

hi i didnt want to read and run but i found this link

http://www.mecfsparents.org.uk/PregnancyandMECFS.htm

with factor you need to take in account of becoming pregnant i hope this helps it gives you a bit more info to i hope this helps hun it is about ME/CFS hope it helps too xx

 

[WILMAFLINSTONE]

Thanks ladies....and thanks for the link...Dr Shepard writes some fab articles on ME and I have ready some of his books when I was first diagnosed with ME......Ive also looked at a few ME sites and Im terrible for reading up on things but its always nice to actually be able to talk to someone who also has ME and experience the same stuff..... Im having a relapse atm anyway so feel uber ill but wont stop me trying.....lol!

Thanks again ladies xxx

 

[titch]

Ahhh sorry to hear you're having a relapse Im really worried the baby's gonna bring on a relapse for me but I supose all I can do is my best to get organised and make my life easier. I met my OH after my last really bad episode so sometimes I think he doesnt understand or take it as seriously as I do, but then I dont think I wouldve been able to understand if I hadnt been there myself. Even when I was in my 1st trimester and sick all the time, even though I was tired it wasnt the same, and I said to my family & friends that for the first time in years my body felt 'right'. Really hope you find the same! And I hope you feel better soon. Someone I knew did some 'vitamin therapy' she had vitamins injected daily. I never went down that route cos I never needed to but might be worth looking into x

 

[WILMAFLINSTONE]

Hi tiny thanks for your reply and support.....

I actually have injections every 4 weeks as I have Megalowblastic anemia (B12 Def) and had last one 13th Jan but its never made any difference this month...another reason I am wondering if I have been very lucky and got preg but prob not!!!

Yes its a difficult illness for a lot of people to understand still due to the stigmas it was giving in previous years especially before it was recognised by the World Health Organisation as a Neurological Disease....now its starting to get the same respect as other illnesses.....and not before time too!

My husband was with me long before I got ME and so has seen me at my best when working full time as an ambulance driver which I loved.... caring for my parents as they both got terminally ill, running two houses, looking after kids/him riding my motorbikes and having a very full social life etc and so hes also seen what its done to me and how its stripped my life back to at some points just existing..... ( I also have 'probable' PPMS too and unfortunatley I use a wheelchair/sticks around the house and outdoors) so it has been very life changing for all involved... but whether this relapse is down to ME or MS its kicking the 'whatsit' out of me atm!

However weve not taken the decision to ttc lightly and have thought about it long and hard so TTC is what were doing....

I hope you dont get a relapse too but think your doing the best thing by being organised well in advance....organsiation and pacing is the best attitude to adopt with ME isnt it so your doing it all right lol!!

Is this your first baby?

You must be so excited.....Ive not been prg for 16 years so a huge age gap but if it happens a very welcomed one....lol!

Look after yourself and thanks again for replying xxx