Sad to be here, should be TTC

[cosmicgirl]

Thanks girls

I hope your oh is ok Bev xx

 

[BevG]

me too but im sure it will be a cyst or something...

 

[babyem]

Thanks girls
Your kindness is really a massive boost for us both, thank you so much.
One day at a time, that's my new approach. Who knows what the future will bring xxx

And thats the best way, one day at a time. Each day is a new day! xx

x Lexi-Mai Louise Birkett's Mummy x Sharing a birthday with her baby boy buddies Ethan and Aaron!! x

 

[Bunny432]

Hey Cosmic, sorry I have only just logged on to read your awful news. Firstly lots of love and luck to your OH, secondly I am absolutely distraught for you both about TTC, life is so cruel at times and although it's hard at the moment try and focus on what you have got in life xxxxx

 

[cosmicgirl]

Thanks girls xxx

 

[Gayle30]

Oh cosmic, I've just seen this. Sending love. Xxx

tapatalking

 

[cosmicgirl]

Thanks Gayle xxx

 

[clairem1980]

Hi cosmic,
Just wanted to drop you a quick line and say you are in my thoughts - you were very supportive when I was asking VBAc questions and I really appreciated that.
I'm going through something similar to you - after a docs appt 16th Jan and a referral to hospital my hubby has been diagnosed with Hodgkins Lymphoma and is currently having fortnightly chemo he is due to have at least 16 weeks of treatment and my second LO is due in six weeks.
I'm hoping to BF again this time and the nurses on the ward assured us on Friday it's fine to take a newborn in and they'd love to see her.
I'm more worried about my LO - she has picked up daddy is 'poorly' and spends day with grandma/Aunty on chemo Fridays. Just worried she will feel pushed out if we all head to hospital and she is left at grandmas I guess we will have to cross bridges as we come to them x
I'm sorry you guys were planning on TTC and didn't have time for the sperm storage. We had only ever talked of having two so I haven't thought much more on that.
We do have a good friend who had testicular cancer and secondary in his lymph nodes 10 years ago. He was successfully treated and his little daughter just turned 8, so there is hope x

 

[cosmicgirl]

Awww thanks hun.
My oh has lymphoma too! I left lo with my sister this last time but lo refused the ebm in a bottle so I drove up and down between home and the hospital for feeds - very stressful! I just wanted to give my oh the full attention, that's why I left lo at home.
I do hope your oh gets better soon, thank you for the lovely message xxxx

 

[clairem1980]

Got to admit I'm not relishing the thought of having the baby in hospital all day but will do what I need to. I don't want OH going to chemo alone - although he says he will be fine.
He's in every other Friday at the moment - just really hoping the little baby doesn't choose that Friday to make an appearance!
I know I'm finding it hard with a 2 year old and only on cycle 1b, really don't know how you're coping with your brood x x

 

[cosmicgirl]

It's hard but luckily I've got a lot of support from my parents and my sister, they have been invaluable!
I find organisation is the key, if I'm not uber organised it all goes tits up so to speak.
Men eh, nothing but trouble xx

 

[BevG]

hey cos how's it going? hope your oh is feeling ok.
my oh is just back from his pre op assessment and he says the doc told him it is cancer but theyre just cutting it out and then checking him every so many months

 

[cosmicgirl]

Awww sorry to hear that hun hopefully they can cut it all out though fx.
My oh has been in bed for 3 days now, can't walk, sweating, vomiting, really poorly. We have this for the first week of each cycle then he gets gradually stronger until we start again
It's very very hard at the mo but what can we do? Nothing, just deal with it xx

 

[BevG]

yeah, cant get all panicky as then they stress worse and cant be too soft and hug them loads as they go all funny about it lol. he said they mentioned he might need some chemo but just the targeted kind on the area they cut from not sessions of the stuff. im dying to go to these apps with him as hes never really sure what the drs have said and dosent seem to ask many questions so i just get his vague idea of what the dr said. hes gonna be stressing about it all week now as the op is a week on saturday.

your poor oh, its horrid stuff that chemo, at least men can pull off bald if their hair falls out without it being an obvious reason huh. i hope your oh feels stronger soon xx

 

[cosmicgirl]

That's love. His chemo targets his whole immune system as he's got lymphoma. It hits really hard and it's tough on us all.
I go to all the appointments as my oh sounds just like yours, I never get the full story! xx

 

[mishi]

Hi lovely,

How are things going?

You're being amazing I have to say

I didn't realise it was Lymphoma oh has, my hubby is a doctor and worked at UCL in haematology before changing speciality to become a pathologist - pm me if you want me to quiz him about anything for you!

Sending you lots of strength and positive vibes hon, its so hard to stay strong but you are doing SUCH a brilliant job of it.

xxxx

 

[cosmicgirl]

Thank you mishi, that's very kind of you
I suppose the one thing that I don't seem to ever be able to clarify is a real prognosis??? They have said that it is incureable as far as it will always be there but have said that in it's current state it is unlikely to effect lifespan. The thing is is that it can transform?? Into an aggressive terminal situation at any time?? I think I have that right. So what I would like to know is - how common is it to transform into the deadly form? How long on average does it take for that to happen? My oh is 45, I believe that is young for this disorder, is that a pro or a con??
My oh has chronic lymphocytic leukaemia btw, I know there are tonnes of different types of lymphoma.
Absolutely any info would be so so gratefully received.
He's still in bed today, the chemo is horrendous but I'll be here, his nurse, seeing to his every need xxx

 

[mishi]

Thank you mishi, that's very kind of you
I suppose the one thing that I don't seem to ever be able to clarify is a real prognosis??? They have said that it is incureable as far as it will always be there but have said that in it's current state it is unlikely to effect lifespan. The thing is is that it can transform?? Into an aggressive terminal situation at any time?? I think I have that right. So what I would like to know is - how common is it to transform into the deadly form? How long on average does it take for that to happen? My oh is 45, I believe that is young for this disorder, is that a pro or a con??
My oh has chronic lymphocytic leukaemia btw, I know there are tonnes of different types of lymphoma.
Absolutely any info would be so so gratefully received.
He's still in bed today, the chemo is horrendous but I'll be here, his nurse, seeing to his every need xxx

Hi lovely,

Sorry I haven't checked in here in last couple of days, I thought you would pm me if you wanted info. I'll speak to hubby tonight and I will let you know what he says.

Hope your oh is starting to get over the worst of the side effects from the chemo, you're right its horrendous - and you are being amazing

xxxx

 

[cosmicgirl]

No worries lovely
He's up and about today but taking it easy xxx