TTC with Prolactinoma

[TC88]

Hi all, after reading goodness knows how many threads, I've finally plucked up the courage/ gotten so down, to start my own.
My husband of 2 years and I decided to TTC August 2014 and came off the pill. No period, blood tests, ultrasound, an MRI and many many negative pregnancy tests later I was diagnosed with a 7mm Prolactinoma on my pituitary gland back in April, with my prolactin levels being in the region of 1300. I was put on half a tablet of cabergoline twice a week, and still no sign of change. Blood test last week showed my prolactin levels have dropped to 600 and doc doubled my dose.
I know it's heading in the right direction but I am getting so fed up with hearing stories of friends and acquaintances that have been with their partner 5 minutes and are pregnant straight away. I have been with my husband over 10 years now and it's my turn!! I feel like I'm letting him down as he was so excited when I came off the pill, and he's been so good with hiding his disappointment.
This probably sounds really whiney, but I would just like to hear from anyone else who's been in the same situation and how low their prolactin levels had to get before they ovulated or conceived.
Thanks in advance!

 

[kittykitchn]

Hi all, after reading goodness knows how many threads, I've finally plucked up the courage/ gotten so down, to start my own.
My husband of 2 years and I decided to TTC August 2014 and came off the pill. No period, blood tests, ultrasound, an MRI and many many negative pregnancy tests later I was diagnosed with a 7mm Prolactinoma on my pituitary gland back in April, with my prolactin levels being in the region of 1300. I was put on half a tablet of cabergoline twice a week, and still no sign of change. Blood test last week showed my prolactin levels have dropped to 600 and doc doubled my dose.
I know it's heading in the right direction but I am getting so fed up with hearing stories of friends and acquaintances that have been with their partner 5 minutes and are pregnant straight away. I have been with my husband over 10 years now and it's my turn!! I feel like I'm letting him down as he was so excited when I came off the pill, and he's been so good with hiding his disappointment.
This probably sounds really whiney, but I would just like to hear from anyone else who's been in the same situation and how low their prolactin levels had to get before they ovulated or conceived.
Thanks in advance!

Hey,

I found out a few months ago that I had high prolactin levels (700-900) after producing milk from my left nipple. I had to google this and request prolactin checks myself (I found out they should have already been done when I got all my fertility tests done).
No one seemed bothered by my levels and weren't going to treat it, either my GP (although she did end up referring me to endoricology) nor my fertility specialist.
They told me these levels weren't something to worry about when trying to conceive.

I bought myself some sage tea from ebay - studies have shown a reduction of prolactin after just a few days of drinking this.

I got my BFP a couple of weeks ago. I don't know whether it's because the levels weren't high enough to cause any disruption, or perhaps the sage tea had an effect...

I would say try not to worry too much if your levels have decreased already xx

 

[TC88]

Thanks for your reply Kittykitchn, it's good to hear from someone in the same boat.
I know I'm just being impatient but will give the sage tea a go, wouldn't hurt would it!
Good luck!