Stephens been diagnosed with glue ear

[mrs_tommo22]

Hes over 3 and hardly speaks, I have alwasy blamed myself for this and when he was diagnosed last week i cried with relief.
Hes not silent and makes a good effort to talk and is very chatty now but there are no words as such he really says
He can say
mummy
daddy
shut up
bitch ( thats recent and called me this the other day )god did i yell at him
bot bot (bottle)
ta
car
boat
toy

But im due to see the doctor soon for him, I really want him to have tje surgery so he i mproves more. Has anyone else gone through this?
Coukd really do with some support and mummy knowledge.

He has all the symptons

Problems with speech, language or social interaction.Clumsiness or balance problems.Appearing to have 'selective hearing' - for example, disobeying verbal instructions.Turning up the volume on the television, or radio, or often saying 'pardon' or 'what'.

I took this from the nhs site and was shocked. Its stephen totally

 

[Kylie1007]

Appearing to have 'selective hearing'

This appears to be a male thing in general...

Glad everything is sorted out though. Must be such a relief! What do they do to resolve it now? Does it involve an operation or something?

 

[mrs_tommo22]

Operation is a option but letting the glue ear go away on its own as well, but i want him to have the operation so he has the year to recover and see how he does before he goes to big school

 

[kellie80]

I was told Jess had glue ear a couple of years ago. The doctors said they don't fit gromits very often now. She was just left Jess has speech problems and some hearing loss, she also has really bad balance (never associated that). She has shown some hearing loss in school tests but when she was refered to someone else she passed the tests, only because she was guessing a lot of it. She didn't tell me till after the test. The teacher also comments on her speech saying she can't understand her very well. we have just been left do get on with it so I hope you manage to get the doctor to help him. I think Jessicas has gone now but her speech is still un clear.

 

[Becksss]

I had gromits & something called t tubes once when i was small
i didnt use to be able 2 hear very well
and have 2 wear ear plugs whilst swimming etc
im ears r fine now but i used 2 get alot of ear infections they are real painful

 

[Redshoes]

BIG hugs mrs_tommo22, it must have been a relief for you indeed, and so glad now you have some options for the best care for Stephen, all the best to you and your brave, clever little boy

 

[mrs_tommo22]

Thanks girls, im going to push for that operation, i feel its in his best intersts

 

[Squiglet]

I'd push for the op hun... Tia had it and it was the best thing ever in my mind...

Tia was diagnosed as having severe glue ear... so bad that she couldn't hear out of her left hear virtually at all and only had partial hearing in her right..yet passed the rattle test the HV did... She must have had it from birth because she always had ear infections...always.

She didn't start to really talk until she had the grommets fitted when she was 2... it was such a huge improvement... But we had to do it privately (my dad had an insurance plan through work) and that's when they did the proper hearing test and realised how severe it all was... The waiting list at Lewisham hospital was 2 years... so she would have been 4 before she could hear properly...

Her words only seemed to be noises that came out her mouth, but she shaped her mouth like I did... only because she wasn't hearing, she wasn't picking up the beginnings and sometimes ends of words... so That would be "At" for example. Also, if I wasn't looking at her directly in the face, she never seemed to obey me or understand what I was saying... And well Tia has always had two left feet... she's always tripping over herself..

As it is she is still suffering the outcome of this hearing problem and she is 8, as she still attends a specialist speech therapist twice a week... but she has vastly improved now, and only struggles with certain words. I posted on here too with the story... http://www.pregnancyforum.co.uk/forum/v ... hp?t=49220

She is soo much better now, and doing well in school, although she still has some problems with spelling words, because she doesn't seem to hear things correctly. She still gets ear infections and glue in her ear though and in those times, she can't hear what's being said. The grommets eventually fall out and hers did when she was about 4/5 (first one then the other several months later)...it's a bit of shock when you find them... but it doesn't hurt for them to fall out... If you have any questions about the op or anything just pm me...

I blamed myself too...as did the HV saying it was my fault she didn't talk...so I know how horrible it is and how wonderful you feel when they finally get diagnosed with this... Don't feel bad...

 

[mrs_tommo22]

wow squigelt thanks so much for that! its nice to know im not the only one, I honestly blamed myself for his problems but for him to be diagnosed and reading the nhs site,i know all his problems are linked to his glue ear. I still cant believe it, but for me now not to have a go at him when before i thought he was being naughty and not listning to actually is really helping and hes much happier since all the yelling has stopped.
He has learnt two new words this week, its a struggle reoeating myself over and over, but i want him to 'normal' i dont him bullied at school.
He needs this operation and from what you have said squiglet about tia, i need to push for it otherwise hers guna have problems later on and i dont want him suffering.

 

[Squiglet]

Try getting down on his level when you speak to your son, just to get him to give you eye contact. Tia also found it hard to filter out background noise, and sometimes, you will need to take him somewhere quiet to talk to him, bathroom, hallways etc.

I know at three a child should be able to start stringing sentences together. Tia was making good efforts to string words together by her third birthday, but it was mostly incoherent babbal.. I understood what she was saying, but no one else could...which is probably why she still speaks through me and I still interpret for her (old habits die hard).

Tia has never suffered any more bullying than any other child got at school, so try not to worry too much about that...and she had her friends, but she was often left out of the loop by the other kids during games, because she lacked the social skill of talking... Since last year and since seeing the speech therapist.. she's a lot more popular.

At 4 to 5 years, most kids can't read or write that they will do most of their lessons verbally. Tia was very bright, but had great difficulty in getting her point across or answer questions in class, which is why the teachers said she needed more help than they could give at school.

With Speech/language problems, you really have to push to get yourself heard and the help is thin on the ground. Once you are in the system you are ok...but you need to push hard get there first.

Don't worry though, Tia has a lovely little life at school (bar the whole pre teen girl angst/drama thing that's going on at the moment and all us women remember ) and she's doing really well, despite her delayed start, and your son will too... He just needs understanding and lots of nudging to do his best...

 

[*saulino*]

Hi

Glad you getting somthing sorted hun