Spina Bifida-please sign the petition to help prevent SB x
- Thread starter klee1988
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Sorry the stupid internet decided to stop working....
Tuesday was a lot better
I got scanned again by a different specialist just for his opinion. He agreed the two conditions were severe and asked me to wait to speak to a baby doctor who delivers special babies.
He was the best person I have talked to so far. I told him about that doctor in admissions and he said he was out of line as he couldn't say what was going to happen to my baby...because he doesn't know either...no one could possibly know.
He has never came across both spina bifida and a d.hernia together.
He said he would see many of them individually a year...well about 10-20, but in all his years working as a doctor...never both together.
He went through them both individually to tell me a lot about them...which was very helpful. He said he didn't know how bad they were...he can't tell until the baby is born. He did say the scan does look bad but you never know.
He told me with a d.hernia, half of his babies live....he doesn't know the percentage with the spina bifida added...but did give me hope that things may be ok.
The doctor said the main thing is that his lungs develop as right now the stomach and intestines have pushed them and his heart to the right of the body. Surgery can easily move the organs back down were they should be...its just the lungs we have to worry about getting strong enough so he can breath on his own.
I haven't to go back for 4 weeks now. The doctor said there is no reason I can't have a normal delivery and go full term...which is really good aswell.
I also went to the midwife who signed me off work and give me a lot of support. She also said the admission doctors behaviour was completely out of line.
So now its just a waiting game until April to see if the little man is going to pull through.
I will keep updated on anything that happens.
xoxox
Tuesday was a lot better
I got scanned again by a different specialist just for his opinion. He agreed the two conditions were severe and asked me to wait to speak to a baby doctor who delivers special babies.
He was the best person I have talked to so far. I told him about that doctor in admissions and he said he was out of line as he couldn't say what was going to happen to my baby...because he doesn't know either...no one could possibly know.
He has never came across both spina bifida and a d.hernia together.
He said he would see many of them individually a year...well about 10-20, but in all his years working as a doctor...never both together.
He went through them both individually to tell me a lot about them...which was very helpful. He said he didn't know how bad they were...he can't tell until the baby is born. He did say the scan does look bad but you never know.
He told me with a d.hernia, half of his babies live....he doesn't know the percentage with the spina bifida added...but did give me hope that things may be ok.
The doctor said the main thing is that his lungs develop as right now the stomach and intestines have pushed them and his heart to the right of the body. Surgery can easily move the organs back down were they should be...its just the lungs we have to worry about getting strong enough so he can breath on his own.
I haven't to go back for 4 weeks now. The doctor said there is no reason I can't have a normal delivery and go full term...which is really good aswell.
I also went to the midwife who signed me off work and give me a lot of support. She also said the admission doctors behaviour was completely out of line.
So now its just a waiting game until April to see if the little man is going to pull through.
I will keep updated on anything that happens.
xoxox
Manda&Thomas
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im soo pleased youve had better news now hun
and that youve got alot more info and things to hope for
manda xx
and that youve got alot more info and things to hope for
manda xx
muppetmummy
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I'm glad the specialist was helpful and a lot nicer than the idiot you saw the other day. He and the midwife both sound very supportive.
I hope the rest of your pregnancy goes well and little ones lungs develop ok. Sounds like there's a lot of reasons to stay positive and the other doctor in admissions didn't have a clue what he was talking about
I hope the rest of your pregnancy goes well and little ones lungs develop ok. Sounds like there's a lot of reasons to stay positive and the other doctor in admissions didn't have a clue what he was talking about
Thats great news Klee im really pleased things are looking up for you.
You sound much more positive today which is good and im glad you got the information you wanted from the docs.
Wishing you, your family and your baby all the best and keep us updated i hope you can start enjoying your pregnancy again and try not to think to much about the future as all babies are stronger than we think and as the docs have said they wont know anymore until he is here.
You sound much more positive today which is good and im glad you got the information you wanted from the docs.
Wishing you, your family and your baby all the best and keep us updated i hope you can start enjoying your pregnancy again and try not to think to much about the future as all babies are stronger than we think and as the docs have said they wont know anymore until he is here.
Klee!! It was so good to read that post and feel like you have a specialist who is truly pulling for you and your little guy - I think that's priceless!
It sounds to me like the doc is taking one thing at a time - ok having both is hard but both have hope and he seems to be planning to manage this rather than chuck the towel in.
For all your son is going to have a rough start, he's coming into the world with lovely parents and it sounds as though his doc cares too, those are really positive things.
Look after yourself, I'm glad you've been signed off to get some pampering done - little boy bub could probably use a few extra pleasure endorphins so get treating yourself!!!
It sounds to me like the doc is taking one thing at a time - ok having both is hard but both have hope and he seems to be planning to manage this rather than chuck the towel in.
For all your son is going to have a rough start, he's coming into the world with lovely parents and it sounds as though his doc cares too, those are really positive things.
Look after yourself, I'm glad you've been signed off to get some pampering done - little boy bub could probably use a few extra pleasure endorphins so get treating yourself!!!
Happybunny
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I am so glad you got to speak to some one with compassion and who knew what they were talking about.
Try and take good care of yourself, I am thinking of you and sending lots of hugs to you and your little baby
Try and take good care of yourself, I am thinking of you and sending lots of hugs to you and your little baby
That's much better news. Although as you have said they can't be sure what will happen with your LO until after he is born, at least you now know again that he DOES stand a chance - even to full term! I still think you should complain about that admissions doctor though hun. He was bang out of order!
Good luck to you and your LO. I'll be thinking of you!
Good luck to you and your LO. I'll be thinking of you!
I'm so pleased you managed to speak to the specialist and he was lovely. I can't believe how badly you were treated by the other doctor. I'll be hoping & praying that your son not only pulls through but proves all the doctors wrong. You're a brave, strong woman
Just a quick update.
Everythings the same which the little man...no early labour or anything like that.
I was in hospital for a few days there with high blood pressure but it has came down again and I was allowed to come home for bedrest.
The doctor I got the last time from admissions was the one who admitted me.
He came into the room and said "remember me", my mum and I just looked at him. He asked how everything was getting on, I just told him my baby was fine. He asked was I told the same by the baby doctor as he said. My mum then said "actually no but we are not here to discuss that, we are here solely for the high blood pressure".
My mum then left the room a little later to use the phone. He asked me had he did something to upset us. In which I told him what he had said was totally inaccurate as the baby doctor said my baby had 50% chance of living. He then went on to say..."So there is hope then?"
He didn't say sorry or anything. If I get him as a delivery doctor when I go into labour...he will be sorry!!!!
I also got a letter from work today saying my full sick pay allowance has run out and I am only entitled to £72.55 a week!!!
How am I going to survive on that???My car alone costs more than that a month and I am in the middle of buying a house. So now I don't know what to do about that!!!
I mean I am not allowed to go back to work, the doctors and midwives have made this very clear. I am not even supposed to leave the house.
I don't think there is anything else I can claim.
Apart from all this, I am glad the little man is still holding on in there. I hate hospitals but it was good to be there as i got to hear his heartbeat like 5 times a day and they said he was a very active baby and i was quite big for 25 weeks. So that make me feel better!!
xoxox
Everythings the same which the little man...no early labour or anything like that.
I was in hospital for a few days there with high blood pressure but it has came down again and I was allowed to come home for bedrest.
The doctor I got the last time from admissions was the one who admitted me.
He came into the room and said "remember me", my mum and I just looked at him. He asked how everything was getting on, I just told him my baby was fine. He asked was I told the same by the baby doctor as he said. My mum then said "actually no but we are not here to discuss that, we are here solely for the high blood pressure".
My mum then left the room a little later to use the phone. He asked me had he did something to upset us. In which I told him what he had said was totally inaccurate as the baby doctor said my baby had 50% chance of living. He then went on to say..."So there is hope then?"
He didn't say sorry or anything. If I get him as a delivery doctor when I go into labour...he will be sorry!!!!
I also got a letter from work today saying my full sick pay allowance has run out and I am only entitled to £72.55 a week!!!
How am I going to survive on that???My car alone costs more than that a month and I am in the middle of buying a house. So now I don't know what to do about that!!!
I mean I am not allowed to go back to work, the doctors and midwives have made this very clear. I am not even supposed to leave the house.
I don't think there is anything else I can claim.
Apart from all this, I am glad the little man is still holding on in there. I hate hospitals but it was good to be there as i got to hear his heartbeat like 5 times a day and they said he was a very active baby and i was quite big for 25 weeks. So that make me feel better!!
xoxox
I am so so glad to hear from you klee! Was really worried about you!!
Great news that your little man is so active and also that the NHS (and the kind doctors) seem to be looking after you. Remember that money is SO NOT IMPORTANT right now and you are doing absolutely the right thing in staying off sick - look after yourself and your baby.
I really hope everything works out for you - keep us updated xxx
Great news that your little man is so active and also that the NHS (and the kind doctors) seem to be looking after you. Remember that money is SO NOT IMPORTANT right now and you are doing absolutely the right thing in staying off sick - look after yourself and your baby.
I really hope everything works out for you - keep us updated xxx
I'm so glad he's doing well hun.. its such a positive sign and anything that gives him better chances is good.. hopefully soon you'll be over with us lot in 3rd tri... As for financially... you'll cope..
you always find a way.. if you are like us you have to rely on savings and credit cards, but you survive.. Manda&Thomas
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glad to hear things are going well for you hun.
can you not get maternity allowance or stat mat pay? as they might work out a bit more i no you can claim m.a from 29weeks pg.
might be worth ringing job center to see if there is anything you can claim
hope your taking care of yourself
manda xx
can you not get maternity allowance or stat mat pay? as they might work out a bit more i no you can claim m.a from 29weeks pg.
might be worth ringing job center to see if there is anything you can claim
hope your taking care of yourself
manda xx
muppetmummy
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Really glad to hear you're both ok
Shame you had to encounter that numb nuts doctor again, he sounds like a complete w@@ker
Manda's right, you can claim maternity pay from 29 weeks. That would bring your money up to 90% of full pay for 6 weeks, then £112 per week.
Not sure what you can claim whilst sick, maybe worth contacting the job centre for advice?
Make sure you rest loads and look after you and baby
Shame you had to encounter that numb nuts doctor again, he sounds like a complete w@@ker
Manda's right, you can claim maternity pay from 29 weeks. That would bring your money up to 90% of full pay for 6 weeks, then £112 per week.
Not sure what you can claim whilst sick, maybe worth contacting the job centre for advice?
Make sure you rest loads and look after you and baby
hi hun, so glad to hear from you, and great that your little man is doing well
financially - some banks offer a thing which covers your earnings if you are off sick, kind of like a unofficial loan until you're able to work again..
i don't know if thats an option to look into? don't worry though, it will wrk itself out, always does
take care of yourself and your little one hun
sarah xxx
financially - some banks offer a thing which covers your earnings if you are off sick, kind of like a unofficial loan until you're able to work again..
i don't know if thats an option to look into? don't worry though, it will wrk itself out, always does
take care of yourself and your little one hun
sarah xxx
bumpmakes3
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Glad to hear you're both doing well
I've no idea on what you can claim and when but what everyone else says sounds about right to me. Just sending you a
I've no idea on what you can claim and when but what everyone else says sounds about right to me. Just sending you a
