Seizures, SLE? and Pregnancy

[Phoenix0306]

Hi

Found out last week am pregnant and suffer from seizures, these are not controlled by medication so that is not an issue.

However I also suffer from a form of lupus, which they are constantly monitoring to check doesn't turn into SLE. Was on anti-malarial tablets and also anti-histamines, have a very low tolerance to the sun!!!

Just wondered if there was anybody else out there in the same or similar situation

 

[babyem]

I have a history of epilepsy, no experience of SLE though x

 

[Flips4]

I don't have a history of seizures I do however have SLE, lupus affects everyone differently and I must say generally on a day to day basis outside of pregnancy I am extremely lucky with my symptoms, I get joint pain I'm my hands and feet and have some limited kidney involvement, i am sensitive to the sun and get the classic lupie butterfly rash across my face but I don't think I suffer with fatigue particularly badly and my bad days are luckily far and few between. I do have blood clotting issues and need to be on clexane and get a lot of extra monitoring during pregnancy... I feel that as we all now know what they are dealing with (they didn't in my last pregnancy) I have all the info and care I need... Good luck xxx

 

[Cazza]

Hi there!

I have SLE and had my LO in January this year,

I survived 9 months without meds just the occassional paracetamol for joint pain and a few 'duvet' days!

I was classed as 'high risk' due to the SLE and high BMI and my age (41) and had consultant led care. They did offer me a C Section because my hips and back are quite bad and I did take this option.

Back on Azathiroprine now though.

 

[Phoenix0306]

Just wanted to say thanks to everyone for replying.

Generally just feel rough at the moment, with my joints and general tiredness (think a few "duvet" days are in my future.

Hopefully the midwife will be helpful, although my OT has referred me to a pregnancy epilepsy nurse, for further information as well.

Hope everyone is doing o.k. today?