Hi guys sorry I haven't been about, I barely have time to do anything these days.
Scarlett is getting better. She has been losing and gaining weight again recently so is still sitting just over her birth weight (she was 1142g born and is about 1198g). She is breathing with help of oxygen and the cpap (a type of ventilator) has gone back into it's cupboard (hoorah!!)
She was on alot of antibiotics to start off with becuse my waters were broken for 2 days before she was born and because I carry GBS (well I showed positive this time anyway), and also becuase the placenta was infected. She was started on 0.5ml of milk hourly when she was a few days old with stuff called TPN (all the nutrients she needs) making up the rest of the feed. She has now moved from the continuous syringe feeding machine to NG tube feeding and at 24 days old is on what seems a massive 26ml 3 hourly
She is still in intensive care and she will be for some time as she cannot maintain her blood oxygen levels at all. She has reflux too which is making the problem worse. It's hard to explain exactly what low blood oxygen levels mean, but it's like apnoea in some ways.
Scarlett is still on EBM at the moment but due to medication I have been put on I can no longer express for her. Good job I was producing at least 1.5 litres a day of milk using the double pump
I have lots and lots in backup supply for her until she goes on preemie fortified formula.
They have said she will not be home till near her due date stil but as Duds said, it's a take things one day at a time thing. Some days Scarlett is good and other days she isn't doing as good. The better days are starting to outweigh the bad now though and we try to look to all the good things she is doing rather than the neagtive.
Sorry I haven't updated sooner, we're travelling so much everyday to and from the hospital as well as trying to work round Damien to keep things normal for him and it's really getting tough to fit anything else in between except essential chores and shopping. Not sure what sleep is anymore
It is really kind to know you are all thinking of us still. I will give Scarlett a hug and kiss from you all. Hope everyone is well.
xxx