Hi I would like to thank everyone for their comfort --
I Had the appointments with the cardiologist. The problem is only the lungs... no problem with the brain, no problem with the heart.. just the lungs. but the lungs are so big that it is putting a lot of pressure onto the heart.. i asked them to be really honest with me... and they had indicated that my little boy had a 10% chance of living by week 24. I am currently only in week 20. and if by somehow the baby survives... through pregnancy the baby will need transplants, weekly monitoring etc... etc... I have a week to think of my decisions of terminating this pregnancy or, if i continue on they will monitor me each week that goes by... but his heart can possibly stop at any time.
Genetics was confusing too... too much info. it has a 0.4% of possibly causing a mis-carriage if i take the test for genetics and cromazones etc... they also indicated that the baby is at a higher %, knowing that he is just already getting by.
... my husband and i talked about it... and i think i will be going through the test, knowing our chance of our little one surviving is already slim. At least then we can know if we have a problem with our genetics or if we can help another family... none of the doctors had seen a case like ours.. which is much worse..
we need to make a decision ... we are afraid but dont want our little one to suffer. can not sleep i keep thinking that i dont feel my baby move so i drink lemonade to re-assure me.
what really bothers me is... i dont drink alcohol, dont smoke, have only one cup of coffee a day (only started back 1 month ago), dont take tylenol or any medications.... no pop,, no problems with anything in both families. how could this happen.
my husband and i have decided to name our little boy by his daddy, my husbands first name. ... after all he is still my little one!
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I Had the appointments with the cardiologist. The problem is only the lungs... no problem with the brain, no problem with the heart.. just the lungs. but the lungs are so big that it is putting a lot of pressure onto the heart.. i asked them to be really honest with me... and they had indicated that my little boy had a 10% chance of living by week 24. I am currently only in week 20. and if by somehow the baby survives... through pregnancy the baby will need transplants, weekly monitoring etc... etc... I have a week to think of my decisions of terminating this pregnancy or, if i continue on they will monitor me each week that goes by... but his heart can possibly stop at any time.
Genetics was confusing too... too much info. it has a 0.4% of possibly causing a mis-carriage if i take the test for genetics and cromazones etc... they also indicated that the baby is at a higher %, knowing that he is just already getting by.
... my husband and i talked about it... and i think i will be going through the test, knowing our chance of our little one surviving is already slim. At least then we can know if we have a problem with our genetics or if we can help another family... none of the doctors had seen a case like ours.. which is much worse..
we need to make a decision ... we are afraid but dont want our little one to suffer. can not sleep i keep thinking that i dont feel my baby move so i drink lemonade to re-assure me.
what really bothers me is... i dont drink alcohol, dont smoke, have only one cup of coffee a day (only started back 1 month ago), dont take tylenol or any medications.... no pop,, no problems with anything in both families. how could this happen.
my husband and i have decided to name our little boy by his daddy, my husbands first name. ... after all he is still my little one!
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are with you both your little boy and your families at this most difficult time.
You poor sweetheart. My very best wishes to you all, I really hope that your little one makes it through this 
