At a loss :( so sad and feel let down

[kittykitchn]

Im sorry in advance for my whinging and ranting...

I found out last week I have very high prolactin levels after producing milk and getting a blood test. I've been on the phone every day to my fertility clinic, who first said they needed to see me asap about it, then I was palmed off and told to go to my GP instead.
I had a telephone GP appointment today, and she seemed very worried - especially TTC related. These high levels could be stopping me conceiving, and I'll have to be referred for a scan and more tests which could take months. This blood test should have been done before my first fertility appointment, and I shouldn't have even been given clomid before having them done. I've wasted the last five months of medication.

I recalled the clinic and told them what the GP had said. They came back with the consultant isn't worried about it, and is happy to see me at my next appointment in a month.
Who am I meant to believe? What should I do? I can't possibly wait a month doing nothing when this is very likely affecting my chances. I have a doctors appointment tomorrow, but I don't really know what to say now.

 

[snowbee]

Hi kitty, sorry you are having a rough time I hope you can get to the bottom of it all. I understand your frustration I've had similar troubles with the fertility clinic we are under, they say oh yes that is a problem very important we sort that out, then in the next breath say how about an appointment in 6 months. As that is going to sort it out quickly. My clinic also lost all the tests my GP did and then insisted I hadn't had them when I knew I had. They drive me crackers with their incompetence. I really think they don't have a clue. I had to have loads of tests before clomid (we are still waiting on some results from last summer!) and now I've had a letter cancelling our July appointment. Just hoping the new one isn't too far away, although obviously I hope we can get a bfp before then and not need it.

Hope your appointment tomorrow goes well, be interesting to see what they say as my GP isn't interested at all now we are being seen by the clinic.

 

[kittykitchn]

It's not my usual GP, so we'll see. I just do not understand why I didn't have everything done before clomid - including the lap and dye. Is it cost related? I can't believe I've wasted months potentially already. Now I feel even lower, because Im expecting BFNs until this is sorted out.
I wonder whether just to go privately from now on and have done with it.

 

[Babybumpwanted]

Hey kitty, this all sounds pretty confusing for you! I would say if your gp seems to be supportive you could ask them to contact your clinic on your behalf with their concerns or you could do some research your self and look at NICE guidelines on it and then kick up a fuss with the clinic. I thoroughly believe in whoever screams the loudest will get what they want! It's not ideal but unfortunately you are just another patient but this is your life that's on hold!!!! Wishing you all the best! None of it is a smooth ride!!! Xx

 

[lisey]

Usually I would be inclined to listen to the consultant at the fertility clinic as they know more than GPs regarding fertility issues but in this case I would follow what the GP says as its not worth being fobbed off.
Unfortunately I think it is all cost related, clomid is a cheap option for them and they hope it works so no need for more expensive treatment.
I hope you won't be waiting long to get additional tests done from GP and I think it could be worth hassling the fertility clinic a bit as it sounds like they are being a bit flippant about it. Its ok for them but for us, the ones with the fertility issues, its the most frustrating and heartbreaking time xx

 

[MariaIsabella]

I am so sorry you are upset. I hope I can give you some comfort.

When I started to investigate my infertility my GP did a prolactin test and it came out high. They put me on a medication called Bromocriptine which brought it down so it is treatable. I then have gone to a private fertility doctor who said he is not very concerned about high prolactin.

What was your level? Mine was at least double or triple from normal and they were not that concerned.

Hope you get some clarity soon.