Spina Bifida-please sign the petition to help prevent SB x

[klee1988]

Thanks for all your replies...it means a lot.
Jus hearing the stories that my baby will probably be alright makes me feel happier

They didn't tell me the gender but they said if I want to know, the specialist can tell me next week when he is doing a more detailed scan.
So hopefully I can find out then!

 

[Squiglet]

I'm really sorry that you have got this bad news.

I had a friend at school with Spina bifida and she was just wonderful despite being wheelchair bound...

Don't read the web on it... it always gives the worst case senario and tbh most cases aren't like that. Doctors can be pretty negative too, so try not to take them fully at their word either.... we were told that my brother and sister, with Downs would do nothing but sit infront of a telly all day and veg... rotfl: I wish that was true sometimes... )

Its a physical disability which most people who have it take it in their stride.

Don't feel it's your fault or that you have done something wrong, because you haven't.... You've just been given a special child to care for.. instead of an ordinary one... and you will love them all the same, if not more because they will inspire you with their courage

There is no guarantee that anyone on here is going to give birth to a child with no problems... so much can happen.. I didn't even know Tia had Poland Syndrome till a year after she was born... yet it was obvious from the moment she was born... I too expected a perfect child, was more bothered about her being a girl or a boy, and felt really guilty after her birth, what did I do to cause it??? .... it is hard...but when you see how well they cope with these things, you just feel very humbled in the end and you realise what a wonderful gift you have been given.

You will make an absolutely fantastic mother... I am absolutely sure of it ... And your baby will be more perfect than you can imagine.

 

[grace]

Special children need special parents,


A meeting was held quite far from Earth,
It's time again for another birth.
Said the Angels to the Lord above,
This Special Child will need much love.

His progress may be very slow,
Accomplishments he may not show.
And he'll require extra care
From the folks he meets down there

So let's be careful where he's sent,
We want his life to be content.
Please Lord, find the parents who
Will do a special job for you.

They will not realize right away
The leading role they're asked to play,
But with this child sent from above
Comes stronger faith and richer love.

And soon they'll know the privilege given
In caring for their gift from Heaven.
Their precious charge, so meek and mild,
Is Heaven's very special child.

 

[sarah113]

so sorry to hear your news hun

 

[Charlie:-)]

Sorry to hear about this big

Theres lots of positive stories on here about other children with spina bifida I hope you find some reassurance from these.

 

[Kimbo]

i've just read that the chance of having spina bifida is 6 in 100,000.
but remember your baby will always be 1 in a million

 

[hannah9000]

I know a lad with spina bifida, it is a severe case as he can only crawl around and has to wear nappies, HOWEVER, he is the most cheerful and happy chap you could ever wish to meet. I spent the evening chasing the dog on my hands and knees with him crawling around everywhere! Was great fun! I managed to reduce his mum to tears by saying how lovely he was (oops!), I guess my message is that although its instinct of course to initially feel gutted, your baby is still your baby, just extra extra special

 

[Fingers crossed]

sorry to hear your news. I don't know anyone with the condition but as others have replied it's not always as bad as it can be. Good luck on Tuesday

 

[LucyBee]

I'm so sorry to hear that.

 

[xJodieLoux]

Must be hard finding that out. I'm not going to say 'sorry to hear your bad news' though, because having a child with a disability doesnt have to be a burden. Obviously it isnt an ideal situation and at times it will be difficult and upsetting, but I reckon you will get alot of joy from your special baby. I once watched a program about children with disabilities and there was a little girl with spina bifida, she could walk, even play football, she went to a normal school, although she had to wear nappies but she was going to have an operation to help with that. She was so cute and sweet and happy, she won my heart, I just wanted to hug her (not in a sympathy way). I bet she is a little ray of sunshine to be around and her parents seemed so proud and happy and so they should.

Obviously everyone is different and it can be quite severe. But even then you just have to make the most of things. But try not to think the worst

 

[xnicolaxcx]

hi. first of all i just wanted to say i am really sorry to hear this..but it may not be as bad as it sounds.
i have spina bifida myself . when i was a baby i was born with a curved spine and the doctors soon sorted me out and that was 20 years ago...so imagine what they can do now.
i can honestly say i have never sufferd from it i did gymnastics for 13 years. it never stopped me.

spina bifida varys from person to person and the internet sites usually always comment on the worst cases. e.g you can type into a search engine that you find a lump somewhere and it will come back saying you have cancer.....and is that necessarily the case....not at all.

i would also like to mention i have a sister with servere cerabal palsy....and she is the best sister anyone could ask for.
everyone loves her to peices! when your feeling down you walk in the room shes in and she makes life worth living. she is in no way a burden on our family. she is unique and has her own special talents. she fills you with pride. i cannot imagine life without her.

wait and see what the specialist says and try not to worry too much in the mean time (i know its easier said than done).

 

[debecca]

What a fantastic post Nicola!

 

[Bloom]

Ive just seen this. I personally dont know a huge amount about Spina bifida but from others have said it doesnt need to be a bad as it seems. It must of still been a huge shock for you and it will take time to get used to it. Good luck for next week let us know how you get on.

 

[poppy160]

I don't know alot about the condition either, but just wanted to say I hope everything goes okay with the specialist on Tuesday

 

[Tegala-7thMarch08]

 

[klee1988]

Thanks for the replies

Nicola- hearing you have spina bifida and have been able to lead a "normal" life gives me a lot of hope!!

I have my appointment with the specialist tomorrow...thought it was going to drag in but it has come around quite quickly. Hope they have some good news for me tomorrow.
xxx

 

[Manda&Thomas]

good luck for tomorrow hun
hopefully there will be loads of options to choice from and loads of info on it all
let us know how you get on
manda xx

 

[klee1988]

Thanks manda

I hope they can give me a lot of info and I'm excited about seeing the lo tomorrow aswell!!They said the scans are a lot better at the specialist unit and they will be able to see everything in a lot more detail. I don't know if that means they will be 3d or not.

I have got a lot of questions for them, so I am going to sit down tonight and write them all down so I don't forget anything.

xxx

 

[muppetmummy]

Good luck for tomorrow hun. Hopefully you're LO will only have a mild form and won't be affected too much by it

 

[Babylicious]

good luck for tomorrow