Had a little cry today..

[nori]

Not had a great day today and i dont think the hormones help! I had my appointment with my gastro consultant as they are keeping an eye on me as i suffer from crohns disease and was seriously ill last year (to the point of almost having my colon out which would have resulted in a permanant ileostomy (bag attached to my stomach). It took over 6 months to calm things down and was hell.

Anyway, my consultant said that my symptoms have probably calmed down abit due to the pregnancy. Crohns disease is an autoimmune disease and when you are pregnant your immune system drops which helps (theres more to it than that but i wont bore you!) She then said exactly what i already knew which was there is a high risk of me flaring about 2-3 months after giving birth. Its something that has been worrying me as i couldnt even look after myself last year let alone a baby! Im just really scared.

I know i will get through it some how, as i dont have any alternative, and i know i can always go and live with my parents again (like last year) but i just cant get it out of my head.

I know there are people so much worse off out there who cope but i just wish i was a healthy person who didnt have this crappy unpredicable illness which will never go away. I just want to look forward to the birth of my baby and feel excited yet at the moment i just feel scared!

Sorry.. feeling a bit sorry for myself today.. im not usually like this honest!!

Claire x

 

[keelie_b]

Hi Claire,

I've read a lot about crohns and its a lot worse than people think who arent aware.
It sounds truly awful what you have had to go through and i cant blame you for being worried about the future.
Its always easier said then done but try and take each day as it comes. i realise that this is not easy and you have been told things could become worse but as i understand it, women have been fine or even better after having a baby so its not all doom and gloom and not a definate sentencing.
hopefully your symptoms will ease once you've had your LO

my thoughts are with you though

 

[emmie]

i think you need some

 

[sarah113]

 

[rach]

 

[halemon]

Hi Claire,

so sorry to hear things have been getting you down, i too have had plenty of little and big huge terrible disaster cries about my blasted bowels!! They seem to improve and them bam, there it goes again with all the probs you know about, gory details excluded! I too am worried about flare up after baby is born and wonder how the heck i would cope as all i can do is lie down and moan and groan when it gets bad. the only thing to do is to think as positive as you can, fight through each day and enjoy the bits about the baby that you can when you feel well. i know how crappy this can be and i really feel for you but you are doing this and will survive, just try to have that attitude, i dn't know if that helps but know i am thinking of you and hope you feel more happy soon, you are always welcome to email me anytime,


hayleyxx

 

[nori]

Thanks everyone. Feeling a bit better today. Ive spoken with some other crohns and colitis sufferers and they basicaly said somehow you just find a way and get through it and i know i will do the same. A friend of mine had the emergency operation to remove the bowel (which is a major op) and she managed so im sure i will too. Was just having a freaking out moment. I still have two other types of drugs to try before ive run out of options so thats one good thing!

Just want to be a good mum and not let this illness get in the way of that..

Claire x