Endo FINALLY diagnosed! Advice/stories for me?

[sunnyland27]

Wow, I just realised I am so lucky there are people on this forum who will understand why I am happy to have been diagnosed with Endometriosis, and will see how it can be better than being in constant pain and suffering from LT infertility without any explanation.

I had my lap and dye on Tues and it went soooooo well. Despite being allergic to almost everything, the GA was amazing and the nurses were all so nice and helpful. Even my consultant was nice most of the time I forced him to tell me something about what he found- I was clearly "with it" straight after the op and waved at him furiously as he tried to sneak past the ward hahaha. Anyway, he said my tubes are clear (woohoo!) but I do have endo. I asked him if it was on the left where I'd said I felt it most, and looked a bit annoyed and said "errrr.. No, in the middle and a bit on the right". Hmmm we'll see if he was lying in 6 weeks when he'll tell me more. Can't believe he would've left me in the dark for that long if I hadn't pushed it. I think I would have flipped.

I can (accidentally) see his notes from the op, (and a diagram) on the carbon copy form I have to give to my GP haha. It's hard to read, but the half-visible diagram looks like the endo IS on the left (lots of crosses on womb, a couple on ovary and some to the left of it all- can't see the right hand side). I can also see "endometrosis stage ll", "1 spot on urethra", "cemx(?) normal" "AV mobile..." "ovaries appear normal... bilateral"

I'm not sure if any of you can interpret any of this? Haha. Its an exciting game but these might not even be notes from my op, so I won't take any of it seriously, don't worry.

Our next appt is a biggie- OH will get sperm results and we'll be given info to decide what to do next. My OH is suddenly into IVF, whereas I think I'm just fed up and have come to terms with the fact I'd have a horrible time with more surgery to remove the endo, over-reacting to hormone meds, dealing with the dreaded doctors, being destroyed emotionally at each appt, then most likely having recurrent miscarriages anyway, either because of immune problems or endo, THEN we'd have to start the adoption process and will be exhausted by it all- not sure how many years of this stress someone can take? Argh I've just got over the diagnosis hurdle and not sure I have the strength to start a whole new journey . I want kids more than anything, ever. I am a mother without children, but is it time to just toughen up and accept it wasn't meant to be, stop being selfish and put all my mothering energy into helping other people/society Xx

 

[lisey]

Hiya,

I had a lap last year for endo, I knew I had it anyway so I was fully prepared. Apparently the right side can hurt even if its on the left (and other way round too) which I know is weird but endometriosis is a confusing thing it seems. Stage 2 isn't too bad from my understanding. They didn't 'stage' mine but said it was the better side of average (whatever that means).
It can be an emotional time after the op, I say give yourself time to get your head around it all and then make your decisions from there. The removal of endo can help with fertility so it could be the perfect time in the following months to ttc.
I think its terrible that they make you wait 6 weeks to hear about the operation, they should go through it with you on the same day, I hope you're recovering well xx

 

[Dee28]

I'm glad you're recovering well xx I do discovered endo during my lap which was a surprise, it was graded and I had an ovary stuck to my stomach and I've still a dodge tube, give it some time to heal and think about things and see how you feel at your next appointment, I've found the whole thing really overwhelming xx