A very bad day friday :( i cryed all day :( my son is braver than me

hotsexymum

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a very bad day friday :( i cryed all day :( my son is braver than me


i was woke up at 4am and Little Harrys Pump went off and could not understand why :( a few seconds passed and i pnicked :( Little Harry button had come out OMG

pnick set in i got every seringe i had and non fit peg :( so i had spear button and i had to put this in Little Harry :(

OMG i put it in , It was sooooo hard to do harry was crying but i had to do as it could of closed over and would of had to op again :( it was the hardest thing i have ever done , it hurt me as much as harry , i feelt sick after and thought i was going to pass out , so i lay on my bed with harry and have cuddles

i rang hospital after i done it to see if it was ok what i had done, local hospital and they said fine you done ok .

then in morning i rang my nurse and she said she would ring doctor at southampton and i sat and waited for call back ,


got the call and i had to take harry back to southampton genral hospital :( my neighbour took my marcus to school and she gave me a cuddle , i was greatfull think she see the tears in my eyes ,


took harry to hospital and as soon as i got there i was in tears :( they looked at Little stright away , i keeped crying as i did not want to see harry go throuhg any more pain it hurts soooo much ,

they put new peg in and harry cryed as it was sore and the infection did not help , they left us in the room for 20 mins and doc came back and said i want to see this is in the right place , he took it out then put it back in , harry waS CRYing real tears :( they said it just a bit sore , we was free to go home
 
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:hug: :hug: :hug: How awful for you all :( Well done for managing to find something to put in it - you've saved him having to go through more surgery :hug:

How is he now you're back home? x
 
:hug: :hug: :hug: How awful for you all :( Well done for managing to find something to put in it - you've saved him having to go through more surgery :hug:

How is he now you're back home? x



harry is doing well he is fine :) he is such a brave boy , but i cryed like a baby xxxxxx

it was sooooo hard . i dont know how i done it xxxxxx its cos i had to xxxxx
 
:hug: I don't think I would have been calm enough to even think what to do in that situation. I'm so glad he's ok x
 
:hug: I don't think I would have been calm enough to even think what to do in that situation. I'm so glad he's ok x



i was not calm at all i was crying :( xxxxxx its all work out nurse is comeing tomorrow xxxxx
 
Sounds like you did everything perfectly though :hug: Hope everything's ok tomorrow x
 
This is so awful for you hun you did well though *hugs* to the lil man.


Your such a special Mummy to have :flower:
 
This is so awful for you hun you did well though *hugs* to the lil man.


Your such a special Mummy to have :flower:



thanks i did not feel it at all at the time and i should off been faster but i panicked :( its the first time and the last i hope , i hope Harry and i never have to do it again , but i would do anything for little harry and i mean any thing .

thank you for your kind words , it means alot xxxxxx
 
You're a really brave mummy hun :hug: Well done for what you done xxxx
 
you and harry are both so brave!! i dont think i'd have even managed to react as quick as you, i'd just be staring like, wtf do i do?! glad he's alright now xxxx
 
You're a brill mum and a lovely lassy Moo BIG :hug:
 
I read this early and was a little confused but it sounds like you are a strong mummy ::petal:
 
I read this early and was a little confused but it sounds like you are a strong mummy ::petal:


thanks hun harry has xxyy

LITLLE HARRY


Has XXYY Syndrome


Characteristics
XXYY is often mistaken for other syndromes. The most common symptoms and characteristics that would be noticeable by parents, teachers, medical professionals and other treatment providers are:

•Developmental delays
•Speech impairment
•Tall, considering family history
•Behavior outbursts & mood swings
•Learning disabilities
•Intellectual impairment
•ADD symptoms
•Autism, autism spectrum, PDD-NOS
•Scoleosis
•Clinodactyly (Curved-in pinky fingers)
•Low muscle tone
•Flat feet
•Sterility
•Delayed sexual development
•Undescended testes
•Low or no testosterone
•Dental problems
•Leg ulcers


Cause and Rate of Occurance

The cause of XXYY syndrome is still not completely understood. Since extensive studies have not been conducted on the cause of XXYY, there is currently very little information about whether or not there are environmental or other factors. However, there is no evidence that parents of one XXYY child are more likely to have other children with sex chromosomal variations. Sex chromosomal variations in general are actually quite common. The occurance of XXYY is 1 in 17,000 live male births. Klinefelter Syndrome, XXY, is 1 in 500.



Diagnosis
Diagnosing xxyy requires a genetic test called a karyotype. The test is done by drawing blood and an analysis is done on the cells of the blood to determine the boy's chromosomal make-up. In some instances, a boy can have some normal xy cells and some xxyy cells. This test is the only way to know for certain that a boy has xxyy.


harry will grow up to 7ft or more and will have many problems .
 
:hug: I didn't realise you had a diagnosis for Harry as i don't get on the net very much.
I feel your pain hun, we have been through alot with Niamh and its awful to see them crying and in pain. Sometimes i find that its after something has happened that the shock/upset hits you. When Niamh had her first operation it was a couple of weeks later when it all hit me and i really struggled to cope. It sounds like your doing a fab job though in really difficult circumstances
love to you and Harry xx
 
:hug: I didn't realise you had a diagnosis for Harry as i don't get on the net very much.
I feel your pain hun, we have been through alot with Niamh and its awful to see them crying and in pain. Sometimes i find that its after something has happened that the shock/upset hits you. When Niamh had her first operation it was a couple of weeks later when it all hit me and i really struggled to cope. It sounds like your doing a fab job though in really difficult circumstances
love to you and Harry xx



:hug: thank you what wrong with Niamh sorry am way behind big time just come on when i can :hug: sooooooo sorry xxxx
 

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