Its typical that you couldn't sleep isn't it. U must be so used to getting up with him, I think you just kinda make peace with it dont you.
It is so hard to deal with Sarah, I'm not really coping tbh. But, i've been feeling happier & more able to cope over the last 2/3 weeks. When he takes a blue spell now, he doesn't need to be excessively patted or put in choking position, and he's not going un-concious after anymore. He's been swallowing it back by himself...I think ( i see it happening with his mouth movements & it goes by itself!!), either that or there is less acid. But I think thats an improvement, it could be due to the solids, tbh i've skipped the puree'd stage & went straight to the lumpy stage as I thought it would help make his throat wider/more used to swallowing lumpier things (doc suggested he is choking coz acid is so thick) he's also been on a dairy free formula & only veg/fruit for meals, so which ever of them is helping, I dont know, but (touch wood) its slightly better. Finally after nearly 12 weeks, I have my referral for yorkhill. Hopefully the doc there will suggest tests which i'd imagine will be at a diff apt.
How come kynon is going white? Was it a random thing?
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