plagiocephaly

swan1

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Hi Girls

I am putting this in here in the hope that even if one of you reads it and it makes a difference then it will be worth it.

My son is 6 months old and from the age of 8 weeks started to develop a flat spot at the back of his head, i was repeatedly told by my hv and gp that it would get better as he got older but instead it has got worse with the result he has a very flat mishapen head now. He is now having to be fitted with a special helmet which he will need to wear all the time for approx 3/4 months to try to remould the shape of his head. This is not funded by the nhs as they consider it a cosmetic problem and therefore will cost me in the region of £2000.00. I am not bothered about that but feel sorry for people who may not be able to afford to pay if necessary.

Now the bit thats important is IF i had been told about this condition before Charlie was born then it may have been preventable or certainly not as severe. It is really important that during the day that you keep babies off their backs as much as possible. I thought that as Charlie was so content and happy in his bouncy chair then it was best to leave him in it, Not the case!!! Also being in car seats should be kept to a minimum, basically anything that puts pressure on their skulls should be avoided, but it is reallly IMPORTANT that as per medical advice babies still sleep on their back to avoid the cot death issue. So ladies make sure you keep an eye on your babies head and if you see it changing shape to any degree speak to your hv or gp straight away as early detection and reposition techniques can work to correct the problem. I dont want to alarn anyone as it doesnt cause the baby any major problems but it causes mums and dads lots of emotional turmoil and if it can be avoided then best all round. Any questions just ask.
 
Yes I agree with that, it's why "tummy time" is very important.
Also you can buy special cushions (they look a little like a squashed doughnut) from places like JoJo Bebe, Blooming Marvellous, Mothercare etc that you just pop under their heads if they are on their back (not for sleep time you can get special memory foam matresses for that) to prevent what is commonly called flat head syndrome.

Do you know of anything else that can prevent it? I have looked into this a little (since seeing it on TV months and months ago) but always take the stance that prevention is better than cure.

Any tips etc you have learned/picked up would be gratefully recieved (either on the boards or PM etc).

Nicola xx
 
Thank you for the post, as a first time mum I am going through a whole learning process, so being made aware of this is great.

Thank you for taking the time to post...... :hug:
 
Thanks for the advise I hope everything works out ok with your little lad.
 
thanks for the post, ill deffo keep that in mind :hug:

Hope the helmet works for you
 
Thanks for the advice....hope the helmet helps your LO
 
Hi

Thats great advice to give thank you :hug: I know other people who have gone through this. I hope it helps your LO you must be so mad at all the doctors
Katrina
 

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