Feel like we've taken 2 steps backwards ** Updated **

laracomps

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Mum insisted on taking Phoebe to a private GP to try and get her seen quicker (we needed a referral for a private paed. I was so upset this morning, my OH said it must be the best thing as it has been upsetting me so much seeing her in pain.

Anyway, we went along and almost straight away she said its classic reflux. She was very surprised that the other GP didn't offer us Gaviscon to try. :evil: So she has given us some for a few days to see if it makes a difference.

Everything, included her snuffly nose and a funny noise she makes in her sleep (a bit like a cat coughing up a hair ball) is because of the reflux. She looked at her weight chart and said well thats why no one has been bothered before - tell me about it.

She told me not to feel bad as the reason it has probably gone on so long undetected is because I've changed things to improve it, e.g. changing her milk, keeping her upright after feeds, trying smaller feeds more often. However I am still finding it hard not to feel guilty. If I still feel the way I have been in a few days I'm going to go to the Docs myself.

Thank you everyone for your advice and support. Will be joining most of you over in the reflux thread now :hug: :hug:





(This is kind of connected with feeding but felt it fit more in this section)

Phoebe had such bad colic when she was a tiny baby she was screaming from 9am-9pm every day. It was exhausting, Doc didn't want to know, 'yes its colic blah blah' but to me it wasn't normal. I went against his advice and changed the formula she was on to Aptamil Easy Digest. After 5 days this seemed to do the trick.

She's always cried a lot, and struggled to sleep during the day. She's always sick after a feed, when she's laid down, when I sit her up. Sometimes she coughs it up, sometimes it gives / is caused by hiccups. I wouldn't say LOADS comes up every time, but enough. Sometimes she seems to swallow it back down again. She seems to start screaming out of no where sometimes, both my mother and MIL have joked that its almost like someone has pinched her. Generally she sleeps ok at night, but I think this is where she is exhausted as sometimes she goes to bed at 4.30pm and stays there for the night :shock:

The situation has gotten worse and worse over the past few weeks. She choked on some sick last Tuesday, it scared me so I took her to the GP who has referred us to a Paed, but is under the impression that she 'is ok.'

Since then we've had hours of crying every day, it is practically as bad as the colic days. She's crying, arching/straightening her back, bringing stuff up for several hours after a feed. By the time she's ok again its time to feed her again. We had projectile sick 2 and a half hours after a feed yesterday. She was lying down on my lap, it came out of nowhere and flew out of her nose as well as mouth. I don't think its just wind, as she's fine in between the outbursts and she's always been good at bringing up her wind. I am trying Dr browns bottles again today in case changing her bottles has made the situation worse, I don't 'think' it has - but the bloomin flow is too slow on them so now she's needing more feeds as she falls asleep.

HV said to me ages ago that it might be reflux, but I think because she was putting on weight ok no one was bothered - in a way I guess neither was I. :(

I now feel like such a bad mum that this has gone on for 4 months without being sorted out. Its got the point where I hope that they think it is reflux or something else because something is just not right. But then we have days where she isn't too bad and I get paranoid that I'm almost making it up?! I just hope the Paed listens :(

Its also getting me down to the point where I feel like I am emotionally spiralling a bit. Friday I had a really bad day to the point where if it wasn't saturday yesterday I would have gone to the GP. Today I feel fine and think I was just being silly.

Just getting this written down has made me feel a bit better. Thanks for reading.
 
:hug: Reflux is hard to deal with as colic- I still have days when Evie is screaming and puking and won't calm down and it does make you feel really crap- the amount of times I have looked at our front door and thought about walking out of it is countless.

Once she gets something for it you will sigh a huge sigh of relief- Evie is just on the gaviscon at the mo and next week will start on her other 2 meds. The gaviscon alone has turned her into a different baby. It's also turned me into a different Mummy- I am enjoying her so much more- I loved her before and I loved doing things with her but now she smiles at me, laughs and is happy with EVERYONE not just me. It's a huge weight lifted off my shoulders- I couldn't have imagined feeling this good a fortnight ago.

Like you, I had to go to the hospital to get her prescribed and I wish we didn't :( I knew it was reflux weeks ago- I'd even posted about it!- and the doctor basically told me to go home and stop being a paranoid mother. :?

Evie has now almost doubled her birth weight- but it doesn't stop her being in pain and it didn't stop her chucking up on EVERYTHING. I think the constant sickiness was the most demoralising thing about it :wall:

If you are worried about her take her down the hospital. I had to take Evie to A&E but if you are worried about her take her today- you are her mummy- you know best :) :hug: If you ever need to chat I'll PM you my home number- my mobile is still kaputt despite my valiant attempts to save it! :hug:
 
what size teats do you have on the Dr Browns?? Can you not go up one just to get the flow faster, I know it wont help the reflux but may help the falling asleep issue!
 
jennywren said:
what size teats do you have on the Dr Browns?? Can you not go up one just to get the flow faster, I know it wont help the reflux but may help the falling asleep issue!

We are on Size 2. Number 3 is too fast and increases her wind badly. Thats why we switched to Tommee Tippee number 2. They seem to be in between. Will see how we go today then will switch back if we see no change.
 
I could have written everything Jade said (except poor Evie ending up in hospital). I would absolutely insist on trying the Gaviscon Lara. If it is reflux (it really sounds like it) then the turnaround will be almost immediate after the first bottle.

Don't be surprised if they try to push you towards weaning her. This was the first suggestion I got from 2 HVs AND the GP. It was the same with Becky - but for the sickness she is fine on milk alone. I told them that she wasn't ready and that was it. Was like getting blood out of a stone.

I got severely f'd off when the GP suggested it was going so well that we take her off it (after 2 weeks!). We were out yesterday for longer than expected so I ended up having to give her this "emergency" carton of formula without Gaviscon and my thoughts were confirmed when she was puking up constantly until her next feed. Finally we've managed to get a repeat prescription.

Have you had your appointment through for paed? xx
 
sounds just like my LO. She's on Easy Digest as well which has improved things (she's not in pain for ages after each feed like she use to be) but the sickness is still there. I was just walking down the stairs and she was singing away to herself and the next think she projectile vomited over my shoulder, all on te carpet and up the wall :wall: :wall: We are on our third outfit today already and she only got dressed an hour ago :roll:

Think I'll make an appointment to see if I can get some gaviscon prescribed for her.
 
daftscotslass said:
Don't be surprised if they try to push you towards weaning her. This was the first suggestion I got from 2 HVs AND the GP.

I have also been advised that weaning will make things 'easier' but stick to your gut- if you don't think she's ready (and from what you've said I don't think she is ready yet). I am playing it by ear- Evie has started showing signs of being ready but I gave up breastfeeding when it got hard and I am determined that provided she is not starving I will hold out as long as possible all be it with bottles every 2 hours!

Don't let them push you into anything- Phoebe is your baby and you know her best. xxx
 
daftscotslass said:
I could have written everything Jade said (except poor Evie ending up in hospital). I would absolutely insist on trying the Gaviscon Lara. If it is reflux (it really sounds like it) then the turnaround will be almost immediate after the first bottle.

Don't be surprised if they try to push you towards weaning her. This was the first suggestion I got from 2 HVs AND the GP. It was the same with Becky - but for the sickness she is fine on milk alone. I told them that she wasn't ready and that was it. Was like getting blood out of a stone.

I got severely f'd off when the GP suggested it was going so well that we take her off it (after 2 weeks!). We were out yesterday for longer than expected so I ended up having to give her this "emergency" carton of formula without Gaviscon and my thoughts were confirmed when she was puking up constantly until her next feed. Finally we've managed to get a repeat prescription.

Have you had your appointment through for paed? xx


I know they often suggest weaning - Phoebe isn't ready at all, and I am not so sure it would help - I would like to hold off until 6 months and I will tell them that.

Her appointment came through yesterday for the 1st of September. Its got a website address on it where we can change it, I tried earlier but its not bloody working. Will try again tomorrow. 2 weeks isn't ages away but it feels it at the mo.

She seems a bit better today, not as much screaming but then again yesterday it was worse in the afternoon. She still woke up screaming earlier, and we've had other random screaming and hiccuping today. Who knows. :(
 
Might be worth going and speaking to a pharmacist - I was going to but managed to get an earlier appointment with a GP. Gaviscon is available over the counter but not sure if they will sell it OTC to an infant under 1 - they gave me it no problem (on the NHS MAS scheme) when I showed them the finished box with her name in it. Or ask your HV if it would be ok to get some to try?

It says on the box that it shouldn't be mixed with milks with added thickener though :think:

I hope you manage to get it sorted soon hon, I know what a misery it is :hug: :hug:
 
Hi, my LO was prescribed infant Gaviscon i used to get 2 weeks worth on repeat perscription each time.
have u tried Gaviscon? has your GP not suggested this to you. :think:
it seems that some docs do not seem to want to prescribe this but surly its got to be worth a try before waiting for app with the pead.
i would def try and get some from your GP . :hug:
 
Thanks all for your replies.

The Dr Browns bottles helped yesterday, but she takes forever to feed (30+ mins) and falls asleep before she finishes. Today she did actually manage to finish a bottle, however the crying, straightening, sicking, hiccuping is back with a vengeance - so I'm thinking maybe her discomfort is actually connected to the amount she is drinking rather than how fast. So I'm going to try smaller feeds more often and see if that helps.

No one has suggested Gaviscon to us, I think because the GP's think she is 'ok' - She has always cried a lot but I just thought this was how Phoebe was, seeing her get worse over the past week I don't think it is. However, this discomfort has occured since seeing the GP. I am not sure if they'd prescribe the Gaviscon or not. I hate suggesting things like this, as even last time I went they asked if I'd 'read anything on the internet' that had made me worry more - erm no, my daughter choking on sick was enough to make me worry thanks :x

I am just about to try and change her appointment. If I can't, Mum is talking about paying to get her seen privately today. But its such a horrendous amount of money - then I worry that she is actually fine and i'm just being a paranoid mother :(
 
My GP was useless also... took DS to GP at 4 weeks and was told colic and to go away!!

It took a trip to A&E at 9 weeks old to get the problem diagnosed - reflux. And meds were then presribed... at 13 weeks these meds were trippled. And Its like looking after someone elses baby - I swear, he sleeps about 4 hours during the day - this is after 12 hours at night. NO fussing while feeding, limmited crying, mainly due to teeth now.

DONT suffer it any longer!! Believe me there is something that can be done. Gaviscon didnt even touch my LO, but the drugs have helped. He has got/had very severe reflux, acid and normal GERD/GORD, if he can be helped theres hope out there for everyone.

It does sound like reflux, I hope the Pead can help, they will prob start your LO on the smallest doses of medication. So dont be disheartened if it dont work, they can upto tripple them... my sons like a different child, I never imagined things could be like this 5 weeks ago.

:hug:
 
:hug: glad you saw someone :hug:

the gaviscon will make a huge difference- it's magic powder I tell you! At ours there haven't been any crying fits or tears (from me or evie!) for nearly a week now! it's amazing! :cheer:
 
aww hun sorry ive just seen this :oops:
I hope the gaviscon starts working for her and im so glad you finaly have her diagnosed correctly :twisted: that it took a pivate doc to do it though kick up the backside for you GP

:hug: :hug: for Phoebe and for you too youve been through the mill trying to help your daughter must have felt like you were hitting your head :wall: but now hopfully thing will get better :D :hug:
 

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