Argggghhhh noooooo.............

[WILMAFLINSTONE]

............Im having another relapse!!!

Sorry this is a major rant!!

Bit of background first....

I have Myalgic Enchephelowmyelitis/Probable MS, Pernicious Anemia(b12def) and NARFLDS (Non Alcholic Related Fatty Liver Disease)!
Narflds develpoped since 2007 when first got ill with neurological disease and became immobile and gained lots of weight!!!

Prio to 2006 I was fit, healthy, extremely active, rode my motorbikes, had a cracking family and social life, was an ambulance driver/attendant and loved everything about my life!

I wont bore you with all the details, long winded explanations of test investigations etc etc etc but basically I am now a wheelchair user when outdoors (also have an electric scooter which allows me some independance outside) and use sticks or furniture walk around the house and go very short distances....have lots of perching stools and adaptions done at home etc but its not the end of the world and I cope and get on with it....untill a relapsekicks in....but i do try not to let this affect me and get on with life as much as I can.

I lost my driving licence in Deb 08 as the Drs said I was having fits....I wasnt! Before MS medication was sorted out I was having sever muscle spasms which looked like a fit but I was completely aware of what was going on around me and never was unconcious! But with me being an ambulance driver I lost my job and my licence, my hobby and part of my social life as I can no longer drive or ride my motorbikes atm...In the process of getting licence back tho I hope so I am getting one of my bikes triked....Anyway.......

I noticed things kicking off again about a week or so ago, started sleeping a lot more again, the severe fatigue kicked in with the slightest exersion, muscle weakness kicked in, cognitive probs and speech probs kicked in, still having probs with eyes (optic neuritis MS related) and now I feel like shi*! I cant get enough sleep atm.....slept for over 12 hours again and just feel like poo!

God damn it!

I hate it when this happens.....
I am on injections for life for my b12 def and usually they give me a bit of a break for a couple or three weeks but they didnt even touch the sides last time which is why I suspected another relapse was on its way and BANG...here it is!!!
My treatment is due on tuesday and I am just hoping it picks me up again! Arrrggghhhh jus feel so crap, low, frustrated at not having my old life anymore and wonder what the hell its going to affect this time!!

Im back at hospital tomorrow seeing my consutlant so kinda good im having another relapse so she can see whats what but I HATE IT!

Im not really the type of person who lets this get me down, and I really have just got on with my life since getting ill but its a bad relapse and its kicking the shi* out of me so I needed a rant....

So sorry for winging on just needed to have a bit of a twist today......and thanks for reading I just hope it goes asap and I can have some better days again xxxx

 

[Mamafy]

Sorry you're having a rough time hun

 

[Terrie]

xx

 

[WILMAFLINSTONE]

Thanks Mamfy and Terri....bloody Drs receptionist at my Drs wants to know the ins and outs of a fart!
I am due my injections today...(desperately) and yes its my fault I forgot to order them on repeat but have had a shitty few days so completely slipped my mind....anyway rang first thing this morning to be told by one of the snotty ladies there that its not her fault! I KNOW THAT grrrrrrr but all I was asking was if there is any way they can get my prescription by 5.30pm today.....so that I could still attend to get my treatment at 5.50! All I got was BFN off her! NO NO NO to everything I asked and tried to explain why I hadnt ordered them before I ran out but she wasnt having any of it! So now I cant have my injections till NEXT wed...Im already flagging big style...apent the last few days in or on bed rest after consultant confirmed a relapse on Friday and fatigue is killing me atm!

Sorry for the rant....I NEVER complain about this unless its kicking the shi* out of me which for the last few weeks it has so my treatment is important and coz I messed up this one time and didnt re-order shes being arsey with me!

Luckily I have the best GP I could ask for so thats the only reason I stay at that surgery!

Never mind rant over ..... back to chilling for another week and conserving what little energy I have!!!

xxx

 

[xXxBonnyxXx]

Big hugs for you hun,

Rant away - we are all here to listen,

x x x x

 

[WILMAFLINSTONE]

Thanks Bonny.... Arrggh im one of those patients who just gets on with things and I seriously am always on top of everything and never twist at them for anything and just this once I messed up they wont treat me with some compassion and FFS they know me well Im never away at times for one thing or another.....but shes won her jobsworth award today!!! Lol xxx

 

[DanDecMum]

Awwwww hun I am so sorry you are having a bad time at the minute big, big hugs for you xxx

 

[WILMAFLINSTONE]

Thank you DDM.....Ive only just had my treatment today.....Grrrrrrrrr just hope it kicks in over the next coupld of days now so I can start to feel alive again.... xxx

 

[vixforever]

I hope your treatment is working Wilma x

 

[Me, My Girls & I]

Hope it's working for you hun

 

[WILMAFLINSTONE]

Hey ladies....Im back after few days hols away and feeling rather canny thank you treatment eventually kicking in lol.....glad to be back and hope your all well xxx

 

[Toonlass]

Pleased your feeling better chick xx

 

[WILMAFLINSTONE]

Thanks TL....how are you and young uns? Well I hope xx

 

[vixforever]

Glad it's starting to work hun x

 

[Toonlass]

Were all ok. Lucas has a bit of a bad tummy but the doc has changed his milk so hopefully he will get better soon. How are you this morning? X

 

[Me, My Girls & I]

Yay glad you're feeling better!

 

[WILMAFLINSTONE]

Thanks Vix TL and MMG&I...... Yeah def having some better days! Yeyyyyyyy!!! lol xxx

 

[titch]

Ah hun, only just caught up with this thread. Glad your treatment is kicking in and giving you a break! theres nothing worse than the fatigue its hard to stay positive, I think youre really inspirational!

 

[WILMAFLINSTONE]

Ah thanks Tiny....yes if it werent for the fatigue I could cope a lot better with the mobility stuff....just hate it when I have treatment and the odd time it doesnt even touch the sides! grrrrrrrrrrrr......... Have you got ME Tiny? xx

 

[titch]

I had it a few years ago but...touch wood... Im better now. My GP was totally useless and made me feel like such a fool so after I had all the bloods to confirm my liver etc...wasnt packing up I stopped going to see him. In hindsight, that was a bad plan, but I fell back on my parents and lived with them for 2 years and ate organic good food, paced myself, started going for walks etc... I didn't get it as bad as some do, wasn't bed bound for more than a day at a time, so I managed to pick myself up gradually. I have to say, being pregnant, I have never felt better, I think I forgot what I was living with because I became so used to it. You have other diagnoses on top of it aswell, right?