x-kirsty-x
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Been back and forwards to the hospital all week cos Ryan is still in SCBU. Its absolutely heartbreaking and I've been in a state but Im getting used to how things are cos we dont know when we'll be able to bring him home.
He's got hypotonia and isn't feeding properly so they're doing loads of tests to try and find out whats wrong. They took his feeding tube out yesterday cos they thought he'd got better at taking his bottle but he just stopped taking it again so the tube has to go back in.
When we visit him we cant even pick him up unless they say so, we asked if we could bath him and we weren't allowed. We walk in the house and see all his stuff waiting for him and its really hard.
He's got hypotonia and isn't feeding properly so they're doing loads of tests to try and find out whats wrong. They took his feeding tube out yesterday cos they thought he'd got better at taking his bottle but he just stopped taking it again so the tube has to go back in.
When we visit him we cant even pick him up unless they say so, we asked if we could bath him and we weren't allowed. We walk in the house and see all his stuff waiting for him and its really hard.