Hiya Sarah
I too have the Factor Leiden Gene, and so has my sister. I am quite appauled that they started your sister so late on heparin as I was started immediately I found out I was pregnant at 7 weeks, and will remain on the injections until 6 weeks after the birth. I have already seen my Hemotologist about 3 times and due to see her when I am 32 weeks again. Im also meant to wear the support stockings but they cause my legs to swell and are so painful that I have stopped using them, as I think they have been incorrectly fitted.
I spoke to the Hemotologist about clots etc and she said that the worst time is actually the Six weeks after the baby has been born when you are most at risk, although I was 6 weeks pregnant in 2003 when I had my first DVT, sadly the baby died inside me by week 11 and they feel it was totally unrelated.
I have to inject myself once a day with a needle injection. When I was first told I was mortifed as I dont particulary like needles anyway and have to look away. For the first five months my husband would give me the daily injections which have to go into your stomach (5 cm away from your tummy button) One day its left hand side, following day right hand side. But for the past four weeks I have done it myself and to be honest its much less painful as the anticipation of someone else doing it is awful, therefore I would honestly recommened learning to do it yourself if you can. The needle is tiny and I can honestly say that 9/10 I feel absolutely NOTHING.
Think of it like this, as I do, its a very small price to pay. I have read up an awful lot on heparin and its actually now being used when people have miscarriage problems because many problems are caused by Clots in the placenta, which the heparin stops. There is no long term effects apart from the possiblity of hair loss (so far so good though) and it does not pass through the placenta to the baby which is good.
Good luck with your Doctors appointment on Friday and I would personally be asked to be refereed to your Hemetolgist, so they are involved in your pregnancy care as well as the consultants.
Ragna xxx