Fibroid??

Discussion in 'Coping with Miscarriage & Loss' started by Onedaysoon25, Sep 7, 2016.

  1. Onedaysoon25

    Onedaysoon25 Well-Known Member

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    Hi, just wondering if anybody has any personnel experiences with Fibroids. I miscarried last week and I have to go for a scan in a few weeks to investigate what they believe is a fibroid. Obviously I googled! Of course it gives me all the information on infertility and removal etc but would like to here some information from somebody who knows first hand. X
     
  2. Lolie14

    Lolie14 Well-Known Member

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    So sorry to hear of your loss.

    I have two fibroids, both roughly 8cms long which were discovered when I MC our first baby. They told me it could have been due to the fibroids but as MC are pretty common it might not have been the cause.

    The consultant dealing with my MC told me they would remove them and would be in touch. A couple of months later I went back to my GP as I still hadn't heard anything about the removal and the GP told me they don't usually remove them from women during their childbearing years as it can cause infertility. I left very confused!

    Anyway, I fell with our daughter a month later and was monitored every step of the way due to the fibroids and when I went into labour the gave me an injection to shrink them as they can cause a haemorrhage during labour apparently! At the hospital I was again told they wouldn't be removed!

    I would love more information on getting them removed.
     
  3. Syd43

    Syd43 Well-Known Member

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    Yes, me. It was discovered I had a fibroid last year and it was thought to be around 10cm. I was 43 at the time and the specialist I saw said at my age it wasn't worth doing anything, certainly didn't want to be giving me hormones to reduce it and didn't mention removing it. The fibroid was outside of my womb, I think on the back vaginal wall (if that makes sense). She knew I wanted to conceive and said again, at my age, that was unlikely and if it happened it happened.

    I started having reflexology a few months after that and my reflexologist (who specialises in fertility) strongly recommended I get a second opinion, she had the name of a gynae that specialised in fibroids and said she had sent lots of ladies to see him. She said she had a strong feeling that it could be causing me a problem despite the fact lots of people have successful pregnancies and births with fibroids. To be honest, I didn't take too much notice for a few months, mostly based on the reaction of the previous gynae I had seen.

    Around April if this year she mentioned it again and I decided what the hell, I would go and see the guy she recommended. He sent me for an MRI and various blood tests. When I went back for the results he said it was showing as a 12cm fibroid so had grown quite a bit in 8 months although he also said scans tend to underestimate the size compared to MRIs. He recommended surgery to remove it, he said there was very little evidence to show that removing fibroids helps fertility but there is a thought that multiple or large fibroids can cause problems. In his opinion it was worth doing.

    I therefore decided to go ahead, he removed in in June laporascopically, it turned out to be 16cm x 16cm! The surgery was no issue, the most discomfort I had was from all the gas the pumped into my stomach so that he could see what he as doing, that was very painful for about 24hrs and then slightly uncomfortable for another couple of days. I have 3 tiny incisions, one of which is inside my belly button so I can't actually see it. I was slightly uncomfortable internally for about a week after the op but I was released the day after the op, I did a bit of walking every day. I got my dogs back from the dog boarder 8 days after the surgery and started walking them as normal. After 6 weeks I wouldn't know I'd had anything done.

    That was mid June. The first time I saw my oh after that was end of July and I got pregnant immediately after about a year of trying. Unfortunately I'm now losing that baby but that's because it's a blighted ovum. Nothing to do with the surgery. Many people are advised to wait longer to ttc after the op (some people up to 6 months) depending on how much they have to cut into you. My fibroid was on a "long stalk" so he didn't have to cut too deeply to get it out hence said I was fine to ttc 6 weeks later.

    I absolutely believe that I got pregnant because I had the fibroid removed. My reflexologist says the attitude towards fibroids in the country is bizarre. Apparently in Spain if you are ttc and have fibroids of any size they just remove them, no messing around, which I find interesting.

    Sorry for the long post but I hope it helps. Good luck with whatever you decide to do and sorry for your loss onedaysoon - I think we were both on April mums together for a brief while :(
     
  4. Onedaysoon25

    Onedaysoon25 Well-Known Member

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    Thank you so much for your replies ladies, really appreciate it.
    Lolie, I'm so surprised your GP said they don't usually remove them, if it's causes problems and infertility anyway, surely it's worth the risk?? I have a scan on the 22nd September and an appointment with the specialist to discuss what they find in November. Im pleased they have sorted appointments and are taking it seriously as I was very uncomfortable during the scan in EPU which she said wasn't normal. I hope Syds reply has helped as she has had hers removed. So pleased it didn't cause any problems when you conceived your daughter, hopefully it's in a place which won't cause you any trouble. X

    Syd, yes we were in April mummy's together, sorry for your loss also. It's been a tough few weeks. I'm glad you managed to get yours removed, from the size of it and falling pregnant straight away it must have been the reason you struggled to conceive. I hope to see some good news on here again from you soon 😊
    I shall keep this thread updated after each appointment. If the NHS are a pain in the bum
    And won't remove it(if I think it's necessary) I shall try and go private through our BUPA, if they let me xxx
     
  5. Lolie14

    Lolie14 Well-Known Member

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    I was just all confused... The consultant during my mc said yes they can remove them but the nurses at the EPAU whilst I was having the MC and my consultant and nurses I saw during my pregnancy all said no they don't remove them! They couldn't even see in my womb whilst scanning me for my MC due to the fibroids. They also grew a lot during my pregnancy and I was huge due to this!

    Syd - did you have yours removed on the NHS?
     
  6. Syd43

    Syd43 Well-Known Member

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    They definitely remove them, it's just not so common in the UK.

    I had mine done privately but the guy that did it does it on the NHS as well. Which area do you live in?

    Two of them around 8cm across seems pretty big to me, anything greater than 6cm is considered large and could impact fertility.

    Oneday, do keep us posted on your appointments. I had private health insurance through work but most insurances don't cover fertility so you need it to be removed for other reasons if you see what I mean. I think mine was pressing on my bladder as I was getting up to wee 2-4 times per night and it is a fact that having it removed can help bladder problems.
     
  7. Lolie14

    Lolie14 Well-Known Member

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    I am in Derbyshire.

    I think I will look into this privately then as I had horrendous pain in pregnancy and had to finish work at 29 weeks due to this and I was huge and the fibroids meant I couldn't bend down or lift anything. We are also not having any luck ttc#2 and I think they are a factor.
     
  8. Syd43

    Syd43 Well-Known Member

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    Ok, was going to recommend my guy but he's in the south.

    Good luck, let us know how you get on.
     
  9. Onedaysoon25

    Onedaysoon25 Well-Known Member

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    Sounds like it's def worth looking into then Lolie with the pain from the last pregnancy. How longs have you been been ttc no.2?
    I'm in Southampton Syd so fingers crossed he's near me if I need to have it/them removed. I will need to look into our private insurance as its with my husbands work. X
     
  10. Syd43

    Syd43 Well-Known Member

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    He's in Berkshire oneday so not close enough I guess :(
     
  11. Onedaysoon25

    Onedaysoon25 Well-Known Member

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    So the fibroid is on my right ovary and there is a risk of it twisting so the consultant I see in November will make the decision to remove it or not. Definitely not wise for me to get pregnant either X
     
  12. Syd43

    Syd43 Well-Known Member

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    Oh that's a bummer although I guess on the plus side (??) it probably didn't have anything to do with your miscarriage?
     
  13. Charlotte9

    Charlotte9 Well-Known Member

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    So sorry your went through mc. Its heartbreaking. :(

    I have a small fibroid. Had laparoscopy done and doc discovered it. He said it does not affect fertility at all.

    I went to the private doc for the second opinion and he said the same. Small fibroids should be left alone and they dont prevent from getting pg.

    I decided to do a bit more research and found out that fibroids are as a result of by excess estrogen in the body. Liver can't cope flushing it out fast enough and it stays in the body. Fibroids grow because of excess estrogen.

    Bad estrogen comes from animal protein, basically cheap meat from the supermarket and dairy. Fibroids dissolve once they have no more food to live on.

    To flush out fast all excess estrogen you need to eat broccoli, kale, cauliflower, brussels sprouts and cabbage daily. These veg contain diindolylmethane and they improve estrogen metabolism. 1 cup of green tea with added apple cider vinegar to improve liver functionality to flush it out faster.

    I stopped now meat and cheese for at least 3 months. Im having a scan in October to see if it is getting smaller.

    Also Im going to see herbal doc to get some chinese herbs to speed up fibroid shrinking process.

    Operation is one option, but they grow back if you dont change your diet.

    In addition: stay away from SOY at all times! Soy is in every single processed food. Soy oil, soy protein and so on. So before i buy anything now I check if there is any soy in the product. Soy is a poison!

    Hope this is helpful. x
     
    #13 Charlotte9, Sep 22, 2016
    Last edited: Sep 22, 2016
  14. Onedaysoon25

    Onedaysoon25 Well-Known Member

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    That's really interesting Charlotte. Thanks for the info. I'm
    Not actually a huge fan of meat, I do eat it but I could live without it so prob worth a try if consultant decides to leave it. Please update the thread in October and let us know if it shrinks X
    Yes Syd, thankfully it looks like it had nothing to do with miscarriage so I am assuming it was just one of those things. Hope you are doing ok X
     
  15. Charlotte9

    Charlotte9 Well-Known Member

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    Yes sure. Once the food is cut off for the fibroid to live on, they basically dissolve within 4 weeks, so it wont be enough time to see the results. But I will have another scan in summer at the private doc again to check how its shrinking.

    I will also order Kale and broccoli powder for days Im busy and can't cook all veg. As long as you dont eat meat and eat these veg its a perfect start for fibroid to shrink. Its day 3 and I dont even crave meat. :)

    xx
     
  16. Syd43

    Syd43 Well-Known Member

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    That is interesting info Charlotte. It's funny because there are so many different theories out there as to what causes fibroids, no-one actually knows. My acupuncturist goes with the Eastern way of looking at it which says it's all blood stagnation, she says that fits in with other things I have going on and she's been working to help that.

    Who knows, at the end of the day, any lifestyle change that is healthy has got to be good.
     
  17. Charlotte9

    Charlotte9 Well-Known Member

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    Im putting my theory into practice. No cheese, meat or soy for 3 months and then I will check the results.

    My mum had fibroid and she had 2 kids, so they don't actually affect the chances getting pregnant unless they are huge and take all the space.

    Operation is not an option for me cause Im still recovering from my last weeks laparoscopy.
    So I will be reading every label now to check if there is any soy product. OH will not be impressed ha ha. :)
     
  18. Lolie14

    Lolie14 Well-Known Member

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    An interesting theory but I have been vegetarian since I was 6 and I do eat dairy but I'm lactose intolerant so it's mainly just cheese I eat an the occasional ice cream! :) My two fibroids are massive. My consultant said they are caused by estrogen too and are more common in those who do not have children or those who leave childbirth till they're in their late 30s.
     
  19. Syd43

    Syd43 Well-Known Member

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    Smaller ones can effect fertility depending on where they are but usually they don't. I think they classify anything over 6cm as large, around there anyway. that's when it can possibly get problematic for fertility although there's no solid evidence to that effect.
     
  20. Charlotte9

    Charlotte9 Well-Known Member

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    Syd, these things are so scary. Cutting out them is a painful procedure solution and they can grow back.

    Im now vegetarian for 3 months, plus completely cut out all soy products, bad oils and processed food.

    Eating all veg, green tea, flax seed and everything natural. Apparently they shrink within a few months.

    xx
     
    #20 Charlotte9, Sep 22, 2016
    Last edited: Sep 22, 2016

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