Delayed 3rd IVF cycle due to spotting ...

[Jezby]

Hey you guys,

Need some advice / rant / etc

We were all set to go ahead with our 3rd and final ivf cycle in Sept so I got in touch with clinic to make the arrangements.

I don’t know why I mentioned it, but I’ve been brown spotting after my period right up until CD 9 or 10 which is usually when I get a peak on my OPK

If I’m being totally honest this has been gong on a lot longer than I’ve admitted to anyone, maybe 9 months or so I can’t actually even remember. But definitely during the 2nd ivf.

So surely all their tests and scans and blood work would’ve showed something up of it was an issue ?

I’ve been told to see my GP & then when it’s been investigated to go back to them. I love our NHS dearly but it’s so painfully slow. I can see this dragging well into next year.

Disaster what have I done ?!?

Anyone got any advice or similar experience to share ?

Love
J x

 

[Bambi42]

Oh Jezby. That’s tough when you’ve been psyching yourself up for round 3. As you know I have my saga re spotting but until my next round of blood tests I’ve nothing to add.

Hopefully they find the cause and you’re mind will be at peace to go into IVF as positive as you can.

Xx

 

[MoominGirl]

I'm so sorry. It's just not fair especially when you're all psyched up.

You may have read my post in Bambi's thread about my spotting and polyps. In my case there was an abnormal reason for it but I would have thought that after going through IVF twice, anything similar would have been picked up by now.

What I would say is that if the GP does refer you, it would probably be to general gynaecology. From memory I think it took about 6 weeks from referral to be seen by a consultant then it was about 3 months wait for the surgery. I didn't think that was terrible for the NHS but I totally understand that it probably isn't what you want to hear.

Is your IVF private?

 

[SugaryIris]

I agree, surely if it was a polyp or something causing it then they would have seen it on the one thousand and one internal ultrasounds you have. Any way you can sweet talk your gp if you say your clinic need the results ASAP? I managed to get a few on my things rushed through that way but I had a very kind older lady doctor.

 

[Jezby]

Oh you guys are the best - thanks so much for the replies.

@MoominGirl kind of - it’s paid for NHS. So there no funding for ivf where I live so the ivf nhs clinic you have to pay for. If that make sense ? So it’s much cheaper than a private clinic as it’s nhs. Only down side is they aren’t very progressive with drug protocols although the care has been excellent.

@SugaryIris i think I will have to lay it on a bit. Say we have paid for the IVF & now it’s all on hold etc.

Like you have all said - you guys know how many scans and tests we go through surely something would’ve come up by now ?? It took 10 weeks to get a referral for a standard procedure pre ivf investigation so god knows how long this is all going to take. I’m gonna be 38 in October and I so wanted to have this last cycle done before that milestone. I can’t bear the thought of this dragging into my 38t year. It’s horrid. x

 

[MoominGirl]

Oh bless you! It's horrible when you think you have a plan in mind.

I understand what you mean about the funding so could you contact your IVF consultant and ask them what they want investigated and how this would impact your treatment plan? As fertility doctors are usually gynaecologists who have specialised and you've had all the investigations associated with IVF, it sounds unlikely to be a gynaecological issue. Are they querying a hormonal issue maybe?

That's why I asked about funding as I guess they could do more blood tests etc but you would have to pay for them. If that was the case, would you be in a position to pay for it if it meant getting them done faster?

Just throwing out ideas though I may be clutching at straws here.

 

[Jezby]

Oh bless you! It's horrible when you think you have a plan in mind.

I understand what you mean about the funding so could you contact your IVF consultant and ask them what they want investigated and how this would impact your treatment plan? As fertility doctors are usually gynaecologists who have specialised and you've had all the investigations associated with IVF, it sounds unlikely to be a gynaecological issue. Are they querying a hormonal issue maybe?

That's why I asked about funding as I guess they could do more blood tests etc but you would have to pay for them. If that was the case, would you be in a position to pay for it if it meant getting them done faster?

Just throwing out ideas though I may be clutching at straws here.

I totally agree with you that it’s a hormonal thing. My acupuncturist has had the same opinion since I’ve been seeing her. I’m hoping just blood tests won’t be too long a wait on the NHS. To do it via my clinic I have to make another appointment with the consultant and as this is outside or standard IVF treatment (ie I should’ve mentioned it at my failed cycle review) it’ll cost £200 to see her !!

Let’s hope it’s resolved quickly. I’ll keep you posted. Thank you for your reply xx

 

[Bambi42]

Random question but do you bloating or any probs with your bowels? I’m getting that investigated down th

I totally agree with you that it’s a hormonal thing. My acupuncturist has had the same opinion since I’ve been seeing her. I’m hoping just blood tests won’t be too long a wait on the NHS. To do it via my clinic I have to make another appointment with the consultant and as this is outside or standard IVF treatment (ie I should’ve mentioned it at my failed cycle review) it’ll cost £200 to see her !!

Let’s hope it’s resolved quickly. I’ll keep you posted. Thank you for your reply xx

@Jezby check your private messages hun x

 

[Outofsync]

My spotting wasn’t diagnosed until just before ivf it was simply low progesterone and they upped it and kept me on it for longer said I would probably always suffer with it but managed to sustain pregnancy with progesterone suppositories it wasn’t even mentioned as an issue it was worse after stopping Clomid x

 

[Jezby]

My spotting wasn’t diagnosed until just before ivf it was simply low progesterone and they upped it and kept me on it for longer said I would probably always suffer with it but managed to sustain pregnancy with progesterone suppositories it wasn’t even mentioned as an issue it was worse after stopping Clomid x

That’s really interesting ... it’s just strange that my clinic - fertility professionals have freaked out over a bit of spotting when I’ve had so many examinations this far. Well I have a GP appointment later this morning so let’s see what they say. On another note - my surgery has 1 female GP who is part time. What a joke .. I mean I’m sure the male doctor will be lovely etc but you know sometimes it’s just easier with a lady doctor.

I’ll keep you posted x

 

[Jezby]

Done. Waste of time. GP was really annoyed they told me to go see him. Spotting after a period is totally normal and it’s not “in between” my period as they worded it which is different. He’s just gonna write a letter for me to pick up next week saying he has no concerns.....

Not really sure what to say?! Seems utterly bizarre...

 

[Bambi42]

Bizarre indeed, fingers crossed they say you can go ahead as planned x

 

[Outofsync]

Done. Waste of time. GP was really annoyed they told me to go see him. Spotting after a period is totally normal and it’s not “in between” my period as they worded it which is different. He’s just gonna write a letter for me to pick up next week saying he has no concerns.....

It seems bizarre mine was after period in between and before period and they just said it’s normal for me and easy to deal with and not to worry hope you aren’t waiting too long for them to move you forward x

 

[miamia]

it's great news you can co ahead

 

[Jezby]

Yes hopefully the doctor will remember to write the letter as promised to my clinic & hopefully all set to go!

Can’t help feeling that’s it’s just not going to work again ..my eggs are not going to suddenly be better quality. I’m glad we can go ahead but I have to say I am not remotely hopeful that this time will be any different

Thanks ladies xx

 

[SugaryIris]

Yes hopefully the doctor will remember to write the letter as promised to my clinic & hopefully all set to go!

Can’t help feeling that’s it’s just not going to work again ..my eggs are not going to suddenly be better quality. I’m glad we can go ahead but I have to say I am not remotely hopeful that this time will be any different

Thanks ladies xx

I really hope this is it for you xx

 

[Jezby]

So here we go... 3rd and final round. Appointment on Friday to have a checkup with the nurse, sign the paperwork and get the drugs ordered. Thankfully the GP came through with his letter so all set for 1st week in Sept.

Any 3rd rounders want to share? I'm feeling excited but also I know whats ahead and how small the chances are...

I'm switching to Menpopur instead of Bemfola (Gonal F) apparently less eggs but higher quality. Fingers & toes crossed

J xx

 

[CDK500]

Good to hear your go got your letter sorted from your gp. Keeping fingers crossed for you. I had menapor for my ivf but I’ve not got anything to compare it to. It comes in little vials and it’s a powder you mix with water, I quite liked mixing it to be honest. Made me feel like a chemist. Hopefully you have better luck with it

 

[Jezby]

oh God not another mixy one!! lol I had cetrotide before it came in a pen & I really struggled with it... is it easy? Do you have to draw it up into the syringe as well?

Thank you.. so do I x

 

[Bambi42]

Good luck sweetie. Positive thinking all the way! I had Menopur. You inject liquid into the tiny bottle and it’s enough for 6 injections I think. Pinch a good inch of your tummy would be my tip! My meds had a link to video to remind you how to do it when the nerves kick in, but it’s easy to mix.

Third time lucky xx